Post I did in another forum about my discontent with the Epi-Stim, wait, wait, wait

I'm just really upset the way the whole thing with the trials for the EPI Stim has been handled. Here's something from the way it has been described that could be helping a real lot of people NOW, I'm sure there is a way to get special FDA Approval going through the proper channels, but nope, they have to raise as much funding as possible for the current trial that ends in 2020, a lot of people involved make huge salaries off the said funding. I would not be surprised if they go into another trial after the one in 2020 is completed and raise yet more funding. I've seen this scenario play out time and time again over my 35 years of SCI. If Epidural Stim really works so good, get it to the people now, we all are not getting any younger. I signed up for the trial, donated a bunch of money to both Louisville and CR Foundation, never heard anything, just get a bunch of junk mail now from all these guys looking for yet even more money. Why bother? As you can tell I'm pretty emotional on this topic, but have good reason to be. Heck if this thing could do for me what was described in the four people who had the Stim unit placed in them I'd be very happy. I just don't see it ever happening. Of course when you talk to these people they will reassure you it's possible and all that jazz. Ya right. Here it is, the first implant was done in 2009 on Summers and he had good results according to the article http://ift.tt/1TY8i88 This was over 6 years ago. Heck even if it did not work out in people and it was implanted vs surface stim as they say they are working on, it could simply be removed. What's the big deal? So 6 years wasted and 4 more to go with the current trial, can you see why I think it will go on at least another 10 after the current 10 years coming up in 2020? But in answer to the original poster, yes, it sounds great and all, just no telling when in the heck it will become available if ever, I've seen so many things like this that were hyped fall by the wayside the past 35 years. Just to refresh everyone's memory, here's the exciting video from a couple years back. Even the Doctor in the video said the risks from the implant are very low and the benefits can be great.http://ift.tt/1ThgS2o Pain stimulator implants are done all the time and this carry's the same risks, which again are very low. I just don't get it.

Post I did in another forum about my discontent with the Epi-Stim, wait, wait, wait