Donnovan Hill, RIP

samedi 14 mai 2016

Such a sad end for this young man who died during a pressure ulcer debridement procedure. His SCI resulting from "head spearing" taught to him while playing Pop Warner football was featured in an ESPN documentary and a legal case whose ramifications forever changed youth football.

http://ift.tt/1ZQT7OG

(KLD)
Donnovan Hill, RIP

Evonne

vendredi 13 mai 2016

I have not seen her in about a year and a half now?
Evonne

EZ Lock bracket for a manual chair needed

I'm in need of an EZ Lock bracket for a manual chair. The EZ Lock bracket model number is BKT-Q2. I include pictures of a similar bracket. If you have one to spare, I'd sure like to buy it.
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EZ Lock bracket for a manual chair needed

muscles

lately it seem that my lower back muscle want to push me forward on my tummy when pushing constanly picking self up and moving backwards I prone at noght a hour or so

very uncomfortable makes pushing hard ideas?
muscles

Elsewhere in the AFC North Kiper graded

Elsewhere in the AFC North Kiper graded

Traveling with e-motion wheels

We are going on vacation next month and will be transporting my wheelchair with e-motion wheels in the bed of a pickup. I was wondering how much I need to cover my e-motion wheels in case of rain? I can remove the batteries if needed and place in the cab but I don't have room for my wheels. I appreciate any advice. Thank you
Traveling with e-motion wheels

luggage carrier

sport aid carries them but ony for 3/4 in I have ti lite tr 1inch where could I find some

tks
luggage carrier

For Sale portable electric lift

I have a portable electric lift the fits into the hitch of of van or car. I'm a quad that uses it to get in and out of my handcycle. Super easy, super fast. If there's interest in it I'll post some photos or a video.

john
For Sale portable electric lift

Looking for a good retractable seatbelt

Hello,

I'm a high functioning C6/8 quad who's been using a manual chair with power assist e-motion wheels for 12 years. I've never wanted a seatbelt because the one I had when I was newly injured 14 years ago would always get tangled up in my spokes or get in the way whenever it wasn't latched. After two unexpected falls this year when I was caught off guard, I decided I want to get a seatbelt for my chair. I bought a retractable seatbelt from seatbeltplus.com (which IS a good site) recommended by my DME supplier. The problem is the assembly and hardware around the spindle where the belt retracts into was too bulky for it to be at my side and would cause skin breakdown if I attached it behind me.

Does anyone know a good retractable seatbelt that works well for use with a manual chair? Any tips/suggestions are greatly appreciated.

Thanks much,
Tim
Looking for a good retractable seatbelt

Best power assist wheels...WheelDrive

jeudi 12 mai 2016

These seem to me to be the best power-assist add-ons out there! Made over seas but apparently you can get them here also. I did some research, and it seems they fit almost any chair. I love the continuous drive outer rims! Along with the regular power-assist inner rims.

https://www.youtube.com/watch?v=gZnFNrsE3h8

http://ift.tt/1sj8ViZ
Best power assist wheels...WheelDrive

Thinking of switching wheel chairs

I am c7 complete I am a little over a year out I was fitted to a permobile F3 which isn't very durable in my opinion. Before this accident I was very active and traveled all over now I run a small car business from my iPad and sit at home and do absolutely nothing. I'd like to get active and a little more independent, I had more than enough down time . So here is my question , I'd like to get into a manual chair and let the electric chair collect dust, I don't have a clue to where to start with this process. I'm no longer in out patient therapy nor go to any therapy. Any help is appreciated..
Thinking of switching wheel chairs

WTF is wrong with my Permobil??

So I've had a Permobil M300 for a bit over a year now, though my primary chair is manual, I use it around town a lot, and for specific things. But it hasn't had a LOT of use...however, right away the front caster was wobbling, then wore down, and eventually I noticed it was bent, and bending more. Then it fell off. Six months of red tape repair (not under warranty that part) with insurance and the stupid DME they sent me to, and it still wasn't fixed right. Even the caster wheel wasn't changed, came back all chipped and worn to nothing. I 'fired' them, and went back to the place that got me the chair. Just got it back, looked like a good job, got new tires all over...
However, taking it out for a spin, I noticed now that both casters making grinding metal noises when they rotate, and the one that had broke made a lot of cracking sounds. There was also like the sound of something hitting the big wheel, like when there's a little object rubbing. The battery drained extremely fast, and I barely made it home. I think what they didn't check was the chassis, that somehow it's gotten tweaked maybe. I just don't get how brand new parts, and still the casters are grinding and not moving freely. Ugh.

I think these rough sidewalks in San Diego suck for powerchairs these days. They are made for in the home, not that. Though I've never had this big of a problem. They're going to be coming back out to look at it, but nobody can seem tofigure this out! Not sure what to do, but it seems this chair is just constantly in repair!
WTF is wrong with my Permobil??

Science and our future

I am always looking outside the box for things that stretch the imagination to its limits yet fall within the realm of reality. Here are a few finds that I think are food for thought.

This first video involves the increasing sophistication of prosthetics. A couple of exoskeleton type devices have been discussed and viewed in CC Forums. At best they are rather primitive and of little practical use. Some CC members disparage related R&D efforts, preferring that the money spent on them be invested in cure focused research. While waiting for a cure would it not be great to have a device with the functionality of the prostheses demonstrated in this video?

I found this next video to most provocative.
If it became possible to graft two precisely cut spinal cord ends together in a way that enabled them to properly function, treatment of our SCI could consist of transplanting our head onto the body of someone who is brain dead. Think it is far-fetched? Watch this video and you will be left wondering. Any volunteers?
Here is a complete text version of the HEAVEN project.
http://ift.tt/1mwhuih
`
You all know about functifonal electrical stimulation. Here is a somewhat different version. Maybe we will one day be able ta walk with a walking aide (person).


`
Science and our future

Knees together

How do you measure/fit a chair so that your knees sit close together? Surely it's not all from a cushion? Years ago I had a shadow and my knees sat .5" apart resulting in better sitting balance and the ability to carry things on my lap. Measuring for new chair today so thought I'd ask you guys for input

Thanks,
roller:grphug:
Knees together

Rubber/latex catheters

There has been talk in the past about allergies from the rubber/latex catheters. What symptoms do you experience to know there may be an issue with the catheters?
Rubber/latex catheters

Gofreewheel and rack for sale!!

I have a used freewheel and rack in very good condition. I also have new parts and nuts and bolts that I ordered for spare. What you will need is to modify your footrest clamp or buy one (part number p102) on their website for $22. I would take $350 shipped. Pm or txt if interested. I would consider a trade for a handcycle plus cash on my end if you're in NJ.
Tin @ (732) 695-4210
Gofreewheel and rack for sale!!

My Solution....so far....For Pressure Sores

mercredi 11 mai 2016

I am T4 injured and also an insulin dependent diabetic. I've done a lot of research on this topic...and I've found that L-arginine taken with L-citrulline has greatly improved my pressure sore healing on both heels and 1 on buttocks over 3 weeks time. My wounds have been cut in half over this time. Really amazing! Do your research, this is something good for all of us!
My Solution....so far....For Pressure Sores

Power assist wheels and smart drive for sale

Selling a Smart Drive MX-1 power assist used about a dozen time, works great! I have the original box and everything you need. Asking $2,000 obo, text or call me at 805-280-2858

I also have Emotion power assist wheels for sale, works great, had them for 8 years but only used the chair for about 3 years. Asking $2,000 for them also

My photos are too large to upload, sorry
Power assist wheels and smart drive for sale

Rectocele

So yeah, that's next. Will create a thread to document how I dealt with that.

Waiting for a call to return to Toronto for a CT Scan and referral to general surgeon. I don't think there will be a fix for a paralyzed female to strengthen that area without it happening again, so probably opting for colostomy.

I'll update as I know more.

I went searching for info and found this thread at Apparalyzed that describes it perfectly:

http://ift.tt/1Nrc1e7

"I can feel the stool is protruding all around the anal area (like a fist of a hand) and it won't come out. It's like its this mass that can't fit through the whole. Like a fist size protrusion all around the anus. "

Later on in the thread, I noticed she pushed through the vagina to force stool out. Guess what I'm doing later?

Paralysis sux. Wondering if this is because of the hysterectomy I had in 2011 or my age or if paralysis is aging me quicker or just flaccid paralysis. Been steadily gaining weight since finished working 3yrs ago too.
Rectocele

Life of Botox

The first time I had botox injections in my bladder I had great results. No leakage for over a year.

The second and third tme I had botox injections i had about eight months of no leakage.

I just had my fourth round of botox in Jan 2016, here it is May 2016 and I'm already having leakage.

*note, this leakage started after trying Renacidin as a bladder rinse. Bladder spasms and leakage is a side effect. I haven't used Renacidin in about two weeks*

Could this leakage be a continued side effect of the Renacidin?

Is it possible that the botox has already worn off?

Does the bladder become immune to the effects of botox over time?

I was hopeful I had at least eight months before I needed more botox.

Thoughts?????
Life of Botox

Really want a bath... Lift?

Nearing eight months since my injury I would love to fund ac way to use my bathtub. Showers scare the crud out of me as I'm not very stable in my sliding shower transfer bench.

My tub, unfortunately, has a swooped upper edge (not flat) and is fiberglass and free standing (not solid when empty). It was a great tub before my injury.

I've looked at mounted lifts like Sure Hands but they're crazy money ($8k). Normal lifts won't work as the tub has no clearance under it and the lift legs can't be spread apart enough to straddle a corner of the tub.

Any ideas? New tub?
Really want a bath... Lift?

WTB--Handcontrols

Looking for a complete set of Monarch or "like" hand controls.
PM me.
WTB--Handcontrols

Relevant to SCI Studies

Last Week Tonight with John Oliver: Scientific Studies (HBO)



https://www.youtube.com/watch?v=0Rnq1NpHdmw
Relevant to SCI Studies

New to cath. Many UTI's. Worried and scared.

mardi 10 mai 2016

Hi,

I'm very glad to have found this forum. The community is great and I enjoy all the positive stories I read.

I've been paraplegic most of my life (glioblastoma as a child removed from spine), but after having MANY infection stones removed from my bladder, my urologist started me on intermittent self cath. I use Cure Hydrophilic Intermittent Catheters.

Since having the stones removed and starting to self cath, I have been on at least one antibiotic per month due to UTI's. I'm currently experiencing the symptoms of yet another UTI (cloudy smelly urine, slight fever).

My urologist prescribed that, at night, I inject my bladder with 30cc's of saline and neomycin through the night. I'm concerned about this as I've not read about anyone on here using the saline/neomycin mix. Does anyone else do this? Should I be concerned.

I started taking vitamin C, multivitamin, probiotic, and cystex twice a day. I read that some people on this forum were having good results with that. But it did not work this time.

I have so many questions...

Am I stuck going back in for another urine analysis and getting on the Cipro yet again? Is there anything outside of antibiotics that can get rid of this?

I don't think my urologist is a specialist with spinal injuries, but I don't know the first place to look for a specialist in my area, central Florida. Is there a database of specialists that anyone knows about?


Thank you in advance to this great community.

Also, how do I add a profile pic to my profile? Do I need to be approved?
New to cath. Many UTI's. Worried and scared.

Flying w/ a smartdrive MX2

Does anyone have first hand experience flying domestically with a smartdrive? I don't see why I couldn't just roll it through security then put it in a backpack and take it on the plane w/ me.
Flying w/ a smartdrive MX2

TiLite ZRA caster broken. Need help in figuring out where and what to get?

Hi guys,

I purchased a used TiLite ZRA Series 1 from eBay back in early 2013. Been using it daily since then. It has gone through a lot, thanks to shitty Indian roads and infrastructure. At times, someone would be pushing my chair and an the right caster would get stuck in an unsuspecting hole/curb in the road, throwing the whole chair with me (heavy) to pivot on that small wheel. Luckily i only fell once, but it has happened a lot. Yesterday, finally, the right caster gave in. It was anyways bearing all the weight, since the left caster had gotten misaligned and was a tad bit higher.

You can see the pics attached to see the status. The nut which goes from fork into the socket attached to frame, looks good but the threads inside the socket are all worn out. There's even a powderish substance formed inside that socket which I'm guessing is broken metal. Now I don't know where to buy that socket which is attached to frame, not even sure if it can be replaced (?)

Should I replace the whole assembly or will I find that small socket? Let's say I wanna replace the whole thing, where do I find these or single forks for TiLite, because Unitine doesn't fit ZRA iirc. I am based out of India, so anything in USD is quite costly for me, but not like I have a choice here. Will try to go for the cheapest way out. Can some veterans tell me what are my options here? It'll be helpful if you also post the website, where I can purchase the recommended parts from. I referred the ZRA manual but the diagrams look different because in them, the nut is attached to the frame and not caster assembly.

For now, I have stuck the caster nut back in, and tightened the screw so tightly that the caster doesn't even swivel freely. Any loose, makes the caster fall because there are no threads in there. Dangerous, I know, but a man's gotta earn.

Name: Caster (3).jpg Views: 0 Size: 662.8 KB Name: Chair (edited).jpg Views: 0 Size: 96.2 KB Name: Caster (2).jpg Views: 0 Size: 110.5 KB

Cheers!
chairDroid
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TiLite ZRA caster broken. Need help in figuring out where and what to get?

Purchasing bed thru Medicare, how or waste of time????????????

I need to get a new mattress like yesterday, as I have two bedsores on wound vac.
I think the lateral rotation feature will help, and I saw on Medicare.gov that I should qualify for one, I called the vendor listed on the site and heard they have one in stock, BUT, will it take too much paperwork and time?
Thanks
Purchasing bed thru Medicare, how or waste of time????????????

Footrests for Quickie 5R

I've got a Q5R chair with a fixed platform footrest. This footrest isn't doing my transfers or ankles any good. Either I have to keep my feet too far from the sea to make a safe transfer or I scrape my ankles on the footrest. I'm thinking of replacing the fixed footrest with the flip-back version. But I worry that the flip-back will get my feet too far under the chair and louse up my balance. So before I shell out to make the experiment I'd appreciate comments from anyone who'se used either or both of these footrests. Thanks! - fw
Footrests for Quickie 5R

Sodium Chloride water or Sterile water for Indwelling Catheter's ballon?

Suddenly got mixed up which should I use for Indwelling Catheter? Had a sudden increase of sediments which cause frequent blockage, with no urine infection(did a test already). My mum suddenly told me that the catheter seller said we should use sterile water instead of sodium chloride water. As the package looks the same, I don't if I got it mixed up.
Sodium Chloride water or Sterile water for Indwelling Catheter's ballon?

i'm in quite the predicament

lundi 9 mai 2016

I can't manage my dysreflexia anymore, it used to be nonexistent i used to be confused when people talked about getting autonomic dysreflexia! Then 2 1/2 years or so after the injury, I got it every time the catheter was blocked,urinating through the penis etc. then it started to happen every time I had a bowel movement or they did a "touch" during care. I've gotten advice about these problems from here, which is what led me to getting a much larger catheter, and trying to obtain numbing cream for BP. Then it started to happen when my testicles were in a bad spot my spasms literally trying to crush them so I have two things in between my legs right now, they're pulled up it can't be that. And that has been the protocol for the last few months since this started I can't wear shoes because my skin has finally become so fragile and the spasms are so bad I have to wear these ridiculous foam Afos and have my legs double strapped with tensor bandages, I also have to have a ridiculous pillow strapped in between my thighs constantly.

Sometimes spasms cause a D which is troubling because I'm worried about my bones, lately at physiotherapy when doing stretches I start sweating the dysreflexia is so bad, I haven't sweat since my accident! Which leads me to a serious problem that is a great concert, I can no longer lay in bed anymore especially if I want to sleep the spasticity has just gotten worse and worse to the point where if I get in bed I am thrown around like a ragdoll left side to the right side legs up and down scraping against child is bashing the knees together constantly out a few times every hour like it used to. But I found a solution$10,000 leg braces that actually flex with the spasms so it's not so hard on the leg their spring loaded so once the spasm release my leg then go straight thanks to the braces, once these are on my legs actually calm down for whatever reason, but even if they don't I am Straight so I can at least get a few hours sleep. The problem is even though these braces are smart and are as flexible on the bone as possible, fact is my bones continue to get weaker and weaker I am genuinely worried about a break or fracture. But if I don't wear those braces I can't go in bed, it's physically dangerous for numerous reasons, it's impossible to sleep, and frankly it'll drive me to madness my body has control over me now and I feel like a complete useless bitch. But as I sit here right now I literally can't stop going dysreflexic it's a affecting my skin my hair standing on endmy blood pressure is going up and down cause and chills and headache. The left side of my brain is very painful and the back of my eye hurts quite a bit as well .

It's at least every 3 to 5 minutes it comes back in different intensities, I've taken two painkillers I gave and I couldn't take it hydromorphone. I'm not pissing myself, I'm not shitting myself the boys are in a safe position the only thing I can think of is a bad fracture. I have no bruising no signs, and sometimes my legs will move and spasm without causing it. I'm due to get a new bone density scan here soon. And I understand the standard protocol with my doctor is to go to the ER, but I go there they don't even take it seriously half them don't even know what it is. Then doublechecking my urine and prescribed antibiotics that I'm probably resistant two because I kept going to the ER, now I'm facing risk of dying from antibiotic resistant bugs as my last urine culture had basic bugs that were resistant to every oral antibiotic, turned superbugs. The good thing is I think I have found a solution it's probably temporary but it's good for now because once I start jumping into iv antibiotics it won't be long till I get you know "the" superbug and I won't even make it to my settlement to leave money behind.

I'm only four years post and it seems like everything has gotten worse, nerve pain to osteoporosis all of that. I basically have to stay indoors constantly now because of the dysreflexia, the rare time my friends get together and invite me out I can't go because I'm not going to get them check my balls and my ass etc. It's almost making me superstitious, just the ugly consistency with it. Maybe it finally is renal failure they've been through a lot when I used to just reflex void, into a condom catheter even when I started ICs I couldn't get someone to do it during the night and it still pushed urine out even with the pills. And the super pubic catheter hasn't been a bulletproof run either. And you know what I plug the catheter every other day to let the bladder fill up as much as I can and the second I start getting ad I pulled it out not safe but I hope to regain bladder function one day that requires a bladder that can hold urine

I've made all the changes that my body has basically forced upon me, I used to do bow care every other day for my own mental respect but also so that sometimes I could just go out with my friends for the night and they could throw me on the couch or something,and I'd be all right as long as they drain my leg bag. And it worked for the first three years, and then randomly I started going disflexic the day I did not do it like bad,after a lot of denial believing that wasn't the reason, then just plain stubbornness saying I'd rather die than do it every other day ( worthy of respect but obviously I couldn't commit weakness I know but it wasn't killing me just severely hurting). So now I do it every day, I take my bladder pills, I wear the boots every day, I put the stupid pillow in between my thighs every day, I go to the doctors, I go to the seating clinic, do the test at the urology office I follow the cripple (high comp quad) protocol now, I eat a fantastic diet measuring all my nutrients. But the relief is always temporary, which is infuriating because all of this requires me to expect more help and it greatly affects how much leniency in my schedule and what I can do! I make all the sacrifices including self-respect to no avail. The only thing I won't do is megadosing baclofin because I know that has implications on the body especially pertaining to recovery, and in a lot of clinical trials it's an exclusion criteria, I have always avoided pills but this life is basically forcing them down my throat and I despise that I do not want to be taking these and there's numerous that I apparently should be taken, and given the fact of my secondary complications being very severe The injury is basically trying to enforce that

I'm sorry to rant this isnt the first day truth be told it's been like this for the last three months so much dysreflexia that I just can't manage, I figure one thing out another thing comes up, some days it is non-stop all of us higher injuries knows how bad it is I will admit it's not the severe dysreflexia when your blood pressure you know quadruples you can't even open your eyes because they're going to explode but let's be honest if I had that for four hours straight I would be long dead even with my youth. Nonetheless I'm still experiencing all the symptoms just not in the extremely severe case,but there periodically consistent I can't stop it and of course yeah it hurts but it's driving me absolutely insane. Nerve pain is bad, and it can be very very bad,but constant bad AD completely overshadows it and apparently it's a whole hell of a lot more dangerous really hard on the body.

I literally don't know what to do there's no autonomic dysreflexia specialist to my understanding, I'm mean for the first time in four years I'm finally going to see an infectious disease specialist you know after a monthly symptom causing infection because of a seriously unlucky high-pressured neurogenic bladder since my injury probably should've seen him long ago, but now it's getting serious time to go see one frig doctors are no help, unless you want a pill even still they can be useless,often times I go to the ER and tell them what to do and know Iam much more informed with anything to do with spinal cord injury. Has anyone had this problem consistent uncontrollable undiagnosable autonomic dysreflexia what did you do? Do you just tolerate it and Cross your fingers, high dose on strong painkiller every day hope that numbs you enough!?

For god sake's it's been so bad these past months, with no help that my mother and I have had to have a long serious talk about a stroke protocol
i'm in quite the predicament

Bladder Augmentation (Ileocystoplasty) scheduled for this week, questions / concerns

Hello forum, I've been reading about some peoples experiences with their augmentation but would like to know some other information as well if anyone who has had this done, especially recently, would care to respond.

I'm scheduled to have this done this week and would like to know what your actual recovery time was like, how long until you were able to drive (lift your chair into the care yourself, etc.) and what was involved in post surgery care (how often you have to irrigate the bladder while it is healing and how long you have to continue to do so after it's healed, is it a forever thing or only for a few months that it keeps producing mucus, etc).

Did you have any issues with bowls afterword or accidents, my biggest concern as I don't want to exchange one "manageable" problem (leaking) with an even bigger one. Any change in diet, liquid intake etc?

If you had it done to prevent leaking or reduce bladder pressure, did you still have any leaking issues afterword?

Any other info or advice would be appreciated and thanks in advance.
Bladder Augmentation (Ileocystoplasty) scheduled for this week, questions / concerns

Flap Surgery for Pressue Ulcer

Had flap surgery, Monday, May 22. All went well. My ischiel bone was scraped and smoothed. Two muscles and flesh were pulled into place to construct the flap. Biopsies of the bone revealed a staphylococcus infection, however, according to Doc, appears benign.

Now on Clinitron bed, with no movement that would irritate the flap, that could prevent adhesion of the muscles covering my ischiel bone. In total I expect to be in hospital seven weeks, most spent in bed.

I am in Augusta, Ga. VA hospital. Receiving fabulous treatment from tremendous doctors, PAs nurses, LPNs and other care givers.

First pressure sore in nearly 15 years.
Flap Surgery for Pressue Ulcer

Top End XLT handcycle review

Thought I would post a review of the Top End XLT handcycle. I have yet to find a solid source for handcycle info, so maybe this will help someone.

I?ve been riding handcycles for 22 years (T-6 para) and have been on a Freedom Ryder for all of that time except for the last 2 years on this trike. The XLT has several things going for it, but two things definitely not going for it. I decided to get away from the Freedom Ryder because I don?t need 21 speeds (never did, really) with all the equipment that goes along with a derailleur. I was tired of dealing with a greasy chain and gear set. The XLT appealed to me because of the Shimano Nexus enclosed gear system. It took a lot for me to change because I love lean steer trikes and Mike at Freedom Ryder is a class act with customer service at the top of his list.

Anyway, the XLT has a nice seat, good leg supports, and a simple, easy to shift enclosed gear system. It also has a poor chain guide system with no tension idlers and is geared to the moon in stock configuration. Those are the two things that almost killed the deal for me. Luckily, I had an old crank from a Freedom Ryder that had a 74mm BCD (bolt circle diameter). This allowed me to mount a small ?granny? cog as shown in the picture. I?ve gone from the original 38T sprocket to a 28T sprocket. This has made the first 4 gears usable, where as the stock gearing required the strength of the Hulk to use more than the first three gears, and that was pushing it. I?m planning on installing a 24T to let me use maybe one more gear. The chain guide system still stinks, but I?ve learned to keep a close eye on the chain tension and adjust it the minute I start to see some slack.

The Shimano Nexus system is great. You can shift it rolling or sitting still; it doesn?t matter. So if you have to stop unexpectedly, you can shift to first to help you get rolling again. The gears are all enclosed, so no excess grease and grunge falling off on your garage floor. It also has a built in brake, so you just reverse the crank to apply the brake. The bike also comes with a backup cantilever rim brake.

So here?s the bottom line, for me anyway. I?m getting old and just cruise the neighborhood anymore. No long distance riding. This bike is great for that. I would not recommend it stock because of the gearing. But if you can change the gearing yourself or have it changed, it is a good alternative to a bike with a derailleur. I still miss my lean steer, but this trike offers a lot for the casual rider. Just get the gearing changed.
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Top End XLT handcycle review

Hand controls

Finally, i have the installation for my truck. After a big search i find this controls only for 50 dlls !! And free installation !!!!!!!!!!

I now that its not the right possition for the controls but works !!

Now im looking for a handcycle , so if anyone have something in the garage please let me now.
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Hand controls

Quad handcycle

HI, IM LOOKING FOR A HANDCYCLE, I NEED SOMETHING CHEAP TO START IN THE SPORT , I HAVE PLANS TO DOED PROFESIONAL BUT ONLY UNTIL I GET A GOOD CONDITION. I NOW THAT MANY HANDCYCLERS RENEW THE BICYCLES SO AN USED UNIT WILL BE FINE FOR ME.

THANKS. jesus
Quad handcycle

Low Iodine - Red Dyes - Colrite Stool Softener

I have to be on a low Iodine diet for the next three weeks in prep for a scan I have to have - Part of my BP routine is to take Colrite stool softener twice a day. However, colrite contains red dye in the outer gelcap. I consulted my pharmacy for a replacement and the only thing he found on the shelf was a laxative instead of a stool softener. Any suggestions out there? Should I take the laxative or skip that part while on the Iodine restriction? My BP works well as is, and I would hate to throw a wrench either way.
Low Iodine - Red Dyes - Colrite Stool Softener

Looking to buy K y jelly 4 oz tubes and magic bullets.

Contact me if you have k y jelly 4 oz tubes or magic bullets that you want to sell.
Looking to buy K y jelly 4 oz tubes and magic bullets.

how to treat bone loss in a SCI patient during menopause?

dimanche 8 mai 2016

I've been a C5/6 quad for 15 years now and have really healthy bones until menopause hit. now I have 10% bone loss in 1 hip. my SCI doctor has put me on fosomax. my ob/gyn is hesitant to put me on hormones because of the blood clot risk. should I just do the fosomax and re-evaluate after my next yearly dexascan?

I'm also on calcitonin, take a good quality calcium w/magnesium and D3. I don't drink carbonated beverages. unfortunately, I don't stand either (long story)

Wise? SCI nurse?
how to treat bone loss in a SCI patient during menopause?

Rochester male catheters, CHEAP or free

I have about 300 cathers to get rid of. mainly rochester 16fr male personal catheters with 50 or so of the magic 3 16fr mixed in the bunch. I switched to coloplast and have no use for these. $20 plus the estimated shipping costs? Or, free with the purchase of this used Icon wheelchair for $1000:
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Rochester male catheters, CHEAP or free

Best thread in world

Discussion threading is an element utilized by numerous email customers, announcement sheets, newsgroups, and Internet gatherings in which the product helps the client by outwardly gathering messages with their answers. These gatherings are known as a discussion, subject string, or just a string. A dialog gathering, email customer or news customer is said to have a "discussion view", "strung points" or a "strung mode" if messages can be assembled in this way.


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Best thread in world

WTB: synchronous hand ergometer

Any recommendations?
Any that I can find new either don't do synchronous or they're crazy expensive...
WTB: synchronous hand ergometer

C5-6 handcycling no triceps

Just need the right equipment. 26.5 miles.
C5-6 handcycling no triceps

Bike-on Quad Elite Carbonbike

Big NEWS! We will now be offering our QUAD ELITE system on Carbonbikes. Taking Quad riding to the next level.
Email me for pricing, I will be offering special pricing on the first 5 builds. John@bike-on.com

Bike-on Quad Elite Carbonbike

Happy Mother's Day

My mom loved roses. For mothers and mothers at heart. -ket
Attached Images
 
Happy Mother's Day

Although the league did not maintain official

samedi 7 mai 2016

Although the league did not maintain official

the camera seemed to launch almost instantly

the camera seemed to launch almost instantly

Bowel Program Frustration Please Help!

Hello everyone!

i am a c6 quad, I do bowels on Monday, Wednesday, and Friday mornings with a magic bullet and dig stim. On the days I do do my bowel program, almost always in the afternoon I will have red slime with clear discharge come out in my pants. It is SUPER frustrating and I don't know why it is happening, am I over stimulating or something? Does this happen to anyone else? Any ideas on how to fix it?

any help would be AWESOME!
Bowel Program Frustration Please Help!

The site also has roots deep

The site also has roots deep

The 2015 tournament will involve twenty nations competing

The 2015 tournament will involve twenty nations competing

Hotels in Newport, Rhode Island

Hi All,
I may be going on a small trip w/family to Newport, RI in Aug. and was hoping to get some WC friendly hotel recommendations, any info is greatly appreciated. Thanks!
Hotels in Newport, Rhode Island

traipsing the dusty rural Irrawaddy Basin

traipsing the dusty rural Irrawaddy Basin
traipsing the dusty rural Irrawaddy Basin

New Aluminum and steel alloy compared to titanium.

vendredi 6 mai 2016

I have just read a little about this material but it's comparable to titanium in strength and lightness and costs 1/10 to produce compared to ti. This could possibly bring the cost of a light weight chair down considerably if used, maybe?

http://ift.tt/1TwhBrV
New Aluminum and steel alloy compared to titanium.

Keeping cool

Has anyone tried one of those 1-room cooling systems? Not the generic fan kind, something like this:

http://ift.tt/1s1zIjv

I'm dreading the hot weather and need a solution for keeping my den cool (2 computer stations running 14 hours per day).

Thanks!
Keeping cool

Twisting torso

I was injured in 1994, c 6-7. For the past couple of years, I have had muscle tension and pulling in one section of my torso. It's like someone with cerebral palsy. My stomach muscles are clear to the left side of my body. It just pulls and pulls and pulls and pulls. I already have a baclofen pump which I know is working. Is there any way to combat this?
Twisting torso

Inle are an iconic image of Burma

Inle are an iconic image of Burma

wanted: Theracycle 200 Virginia

Looking for a gently used Theracycle 200.
Live near Richmond, VA
Using for Parkinson's
wanted: Theracycle 200 Virginia

Portable lift

Has anyone ever heard of or seen a Hoyer type lift that is portable or foldable for travel? It's a pain to try and rent one.
Portable lift

permobil F3

I've had nothing but pain sitting in my five-year-old Permobil C300. The back is absolutely terrible and I've never had such shoulder and elbow pain as that since I got this chair. There was absolutely nothing that could be done in terms of aftermarket backs or modifying the back although the seating specialist and PT got me a custom overlay foam back which did absolutely nothing. The lateral supports built into the corpus 2 back stink and the add on laterals are painful and restrictive.

The new Permobil F3 chair has the option of three aftermarket backs, J3, matrix elite, and varilite icon, all of which look superior to it came with the C 300, and are compatible with tilt and recline features necessary for someone like myself.

I'm hoping my therapist and seating specialist will go to bat for me to try to get me a new chair, although they have indicated that it may not be easy even though it is been five years.

Does anybody know anything about the F3?

Has anybody begun the process of getting a new power chair from Medicare after five years? Have your professionals given you optimism or pessimism as to the possibility?
permobil F3

Hand tremors

My question is in regards to hand tremors. So, if this is the wrong page, please redirect me. The tremors to date, are not associated with Parkinson's disease. If anyone has any experience with this, any medication suggestions or specialist in Pennsylvania would be Very much appreciated.
Hand tremors

How to manage bowel program when travelling outside country??

Hi all. ☺☺☺☺. Love to all. It's been long time.
I must say SCI life is challenge if you want to be independent.

Now I am planning to travel.outside India. But I don't know how I will manage my bowel plans. It's costly to take my caretaker with me everytime. Also bathrooms toilets may not be accessible in every hotel. Getting shower commode chair is also troublesome.

How do you all travel and manage bowels??? I did search carecure forum but read no solution.

Love to you all again xxooxxooo
Shweta.
How to manage bowel program when travelling outside country??

Anyone drive from their rigid manual chair?

Got a friend who had his truck modified to lift him into and drive from his manual chair. But nothing keeps his chair from tilting backward whenever he gets on the gas kinda hard. The brakes keep the rear wheels still but the front casters lift up under acceleration. Anyone have any solutions for strapping/locking the front of the chair down? Surely lots of people drive vans from their manual chairs...
Anyone drive from their rigid manual chair?

Tube thickness of TiLite TR vs Terminator Titanium

Does anybody know the tube thickness (outer diameter - inner diameter) of these two chairs? I've see people snapping backrests on Tilites and that scares me a bit to be honest. I tend to abuse the crap out of my chairs.
Tube thickness of TiLite TR vs Terminator Titanium

also got themselves a punter on

jeudi 5 mai 2016

also got themselves a punter on

out of shape

holy crap I just got my rio hand cycle wow I am crying I am so out of shape I have been rolling dayly about 3.4 miles this just kicked my but in less than 60' and I was in 1 the eastiest gear

no fair I want to enjoy the rest of my life here do I give up getting in shape or ... at 65 or just struggle about ready to send back get motorized to go with sister and the push in the evenings

I am just....disgusted with my self
out of shape

meds and short term memory loss

T6 complete, with severe nerve pain. Really getting tired of the mental side effects of all the meds I'm on, especially the short term memory loss. If you gave me $1,000 to remember to do something in 10 minutes, I couldn't do it. But I'm trying to go down on this stuff to see if it will help the side effects while still providing relief (which is very little anyway). It seems most if not all the meds I take potentially have this side effect. So I'm asking based on your experience, which ones caused it for you. I'm currently taking...

Pain meds:
1200mg Gapapentin (down from 3200)
75mg Tramadol (down from 400)
10/325 Percocet (about 1 every day or two, as needed)

Other:
Oxybutinin
Xarelto

I'm assuming this is coming from the Gabapentin or Tramadol or both. Any input/experience is appreciated.
meds and short term memory loss

3D-Printed Wheelchair Will Be World's First to Offer Customizable Design (article)

This could be pretty cool.


http://ift.tt/1VL88D6
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3D-Printed Wheelchair Will Be World's First to Offer Customizable Design (article)

Right Foot Swollen Again!

mercredi 4 mai 2016

M right foot swells for a few days every few months. I've been to the ER, seen specialists, had ultrasounds for blood clots and all with no indication for the cause. It's also warmer than my left foot.

Has as something this happened to anyone?
Who should I go see?
Right Foot Swollen Again!

Are you over 50?

I watched this commercial for a couple months. I thought the 1 out of 3 was bs. WRONG! I got them 12/30. All over my waist. I had headaches a month. It's finially gone. https://www.youtube.com/watch?v=KSI2AZQmEsU
Are you over 50?

Head-tracking mouse designed for people with disabilities

Not sure if this is a good design or not, but thought I would put it on here just in case someone may be interested.

http://ift.tt/1SPASVF

I also put it in equipment vs computers for better exposure.
Head-tracking mouse designed for people with disabilities

C5/6 for fifteen years and no blood clots..very grateful, but is this normal?

A few days after the car accident that started this whole adventure, bone fusion surgery was done. A blood clot was traveling towards my lungs during this and was caught in time. An inferior vena cava (Greenfield) filter was then installed to prevent this from happening again. So, supposedly I'll won't be in danger of having a pulmonary embolism.
However, I'm curious about something.
I hear stories of people getting blood clots in their legs due to a time of bed rest or even an airplane ride, when their legs are immobile for a time.
The burning question in the back of my mind was always: why don't I have these?
I finally asked someone, and they told me that, for some reason, SCI patients tended to not get blood clots. What I'd like to know is, why? Does our blood get thinner as a result of our injury (I'm not on a blood thinner) Is this statement even accurate and if so, why?
Wise, SCI nurse?
C5/6 for fifteen years and no blood clots..very grateful, but is this normal?

Man City vs Real Madrid

Man City vs Real Madrid

which they keep in irrelevance to the position they

which they keep in irrelevance to the position they

looking to donate my tilt/recline power wheelchair (Southern California)

mardi 3 mai 2016

I have a 2010 Invacare CG tilt/recline power wheelchair that I almost never used. This chair was ordered for me but just didn't fit my needs. It's probably been driven a maximum of 20 feet in its life. It's been sitting in my garage for the last six years collecting dust and I really want to donate it to someone or an organization.

I did strip a few parts from it to use on my current chair.
These include
an arm pad
the joystick knob
Headrest
back and seat cushion
it will need batteries and a charger as well.

I'm located in the inland Empire. If you're interested let me know.

pictures below
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looking to donate my tilt/recline power wheelchair (Southern California)

Pressure socks

Sigvaris got rid of thin pressure socks and the ones they have now are too loose.

Are there any other brands that have thin socks?
Pressure socks

San Francisco area van rentals

Hi, I currently have a van reservation for next month with Wheelchair Getaways, but was curious if that was the best option? We will only be arriving/departing in SF, not staying there.
San Francisco area van rentals

Elbow Bursitis

I've developed bursitis in my elbow and have had the fluid drained twice and about to be three times in the last 6 months. I do pressure releases by pushing up with my elbows and I'm sure this is the cause of it after 30 years. Can anyone recommend a good elbow pad that will relieve some pressure or provide input on what they may have experienced with bursitis and how they solved the problem?

Thank you.
Elbow Bursitis

Magic bullet suppository, where do you buy?

Allegro medical and Sportaid are out of stock, they only have packs of 10 :banghead:
Everything is on backorder
Magic bullet suppository, where do you buy?

SCI Nurse - in-hospital colonoscopy?

Good afternoon,

I recall reading the Medicare would pay for a 23 hour hospital stay for colonoscopy prep and procedure. Is that still the case?

Thank you.
SCI Nurse - in-hospital colonoscopy?

Bayern Munich vs Atletico Madrid

Bayern Munich vs Atletico Madrid

Easy Stand 6000 Glider and ERGYS1 for Sale

Easy Stand 6000 Glider for sale - $2500 (like new). Also have a REGIS1 FES bike for sale $2000. Located in Hamilton NJ - contact me here or at ctararuj@optonline.net if interested.
Easy Stand 6000 Glider and ERGYS1 for Sale

I must give a shout out to all you care givers

I must give a shout out to all you care givers, I have been laid up for over 90 days and my wife has had to care for me like a newborn baby, feeding, bathing, personal grooming etc... I seriously do not know what I would do without her!
I must give a shout out to all you care givers

Just can't stand it

Apparently once you become crippled badly enough to leave you completely bound to a wheelchair dependent on caregiver; you don't have the right to get in and out of bed when you want! Apparently if once in a blue moon you're allowed to stay up till 3 AM to do something "fun" you are being privileged , You're supposed to count your sweet blessings; and bass in the generosity of the person that allowed you to do this. Apparently if you need to calm your hair, get the gel handed to you, as well as your toothbrush, as well as your flosser , Then followed by your sweater call the supplements and breakfast etc. apparently you have to break it up in sections, at best you'll get the standard morning procedure if you wanted to do something out of the ordinary or add a new procedure to your daily schedule such as a rigourous diet, or a hair treatment you don't have the right, you may or may not be humoured with it once in a while but don't expect it every day, even if it is necessary to do it every day! apparently when you're crippled at 4 o'clock in the morning, if you're in agony, and you're not tired at all, and you're angry as hell you have no choice you have to sit in bed you don't have the right to get up and go for a walk or a roll in this case, it's 4 AM it doesn't matter that you're an individual that's in pain and not tired and frankly frustrated beyond imagining about being trapped. Like I get a kickboxing is gone, snowmobiling is gone, weightlifting is gone, bodybuilding is gone running is gone, even proper video gaming is gone (oh I spend the money and I tried) The list goes on, but now every day I am dictated on bedtime schedule. Many of times at my fathers house I said Thursday till the fucking end of an entire night, with water and arms reach away but unable to reach two arms to grab it so I stayed thirsty until someone woke up in the morning walked by. Here I am about 5 o'clock in the morning, couldn't sleep couldn't stand sitting in the bed so after a lot of arguing I bitched and bitched just because I had enough and now I'm out of the bed, but as a repercussion I'm not able to go back in bed. Well this is happening I and being preached about civil rights and Breaktime, off shift blah blah guess after a serious enough disability a lot of those rights go out the window.


Mindnumbing fact this weather it's my father, my mother, my friend, or nurse it's always the same thing I can't do this constantly, I need a break as they constantly walk in and out in and out in and out in and out, taking showers, scratching their ass using the toilet completely unaware of every little blessing every luxury of the human body worth more than $1 billion. When you pointed out to him what they have, you face nothing but defence of backlash, oh yeah I have to sit here and look after you as if they're sitting stuck in one position all day! Nothing could be farther from the truth, yes they do provide me with caregiving but nothing is written in stone nothing has to be done! Nothing is stopping them they are making a conscious willing choice to help me that is a luxury in itself and they are so ignorant to true suffering they don't realize it. I wouldn't wish it on anyone, but true suffering is when there is no choice,A disease or disability dictate most of your life most of your decisions what you can and can't do, There's no choice the best you can do is adapt and live without it, work around often with slim pickings they have to be picked up by someone else before you get your get your share.

I know I'm a violent individual, I deeply want to hurt those that hide behind weapons or pray on the weak a dexter complex. If I ever got the upper hand, it would probably take everything in me not to kill them. Don't have to worry about that now! I know I'm a serious and often miserable individual, I'm not bubbly I'm not optimistic, I see harsh realities and don't pretend they're not there! In fact the thought of me being bubbly turns my stomach, being affectionate makes me uncomfortable! But I am who I am, and truth be told I love myself I wouldn't have it any other way because it's the kind of mentality that's the only way to achieve what I wanted to achieve! At this time I should say I loved myself.

Physical ability as well as appeal mean everything to me! Ever since my disability because I don't try to paint with my mouth, I am choosing to be miserable apparently! Apparently after a severe disability you no longer have the luxury of being an individual. Apparently you're just supposed to enjoy what remains despite your disability! What here's a hard fact everyone tries to avoid if the injury is bad enough, depending on the individual they can literally lost everything they truly enjoy doing, everything they are passionate about. Often told I'm not trying because I don't go out to dinner with my mom and her boyfriend, well I genuinely don't enjoy spending too much time with them, in fact I've never enjoyed going out to dinner unless it was with an attractive female I planned on sleeping with. I was once told why don't you just take a taxi and go check out Walmart by my father, once I explained how stupid that was I was just disregarded as being miserable without trying. Well I have a question, why are none of these people spending mass amount their time drawing pictures, check it out Walmart, reading, writing etc. because they don't enjoy it, it would be like peeling paint for them their brain would never literally reject it and nothing productive would be done Best zombie mode autopilot would be activated. So basically just because able-bodied people have all the choices in the world on what they choose to do, I'm miserable because I don't do the small amount of things that I could do on a regular basis despite the fact that I genuinely don't enjoy any of them! The few that I can tolerate, I don't mind them like say watching/ going to movies, reading, playing apps etc. Funds permitting I do them to death, I don't much like quadriplegic physiotherapy but I wish I could do more it's just too expensive. Nonetheless none of these things that I just do because they're the only options fill me with genuine enjoyment, contribute to making me have a good day or making me less miserable or taking my mind off the fact that I am about to ask for assistance yet again, it doesn't justify the later because I get nothing out of it. wellllll sorry art, or even rugby the quadriplegic equivalent etc aren't my thing, that's just the way it is. It's no different than the fact when my friend got a gun pulled on him ( ende up being sake but we didn't know that truly), I was the only one that stood by him everyone Else ran just who I am.

Frankly I'm getting sick of able-bodied people complaining about their trivial problems in the sense that they are temporary, it's not permanent with time or with effort it'll pass. I don't even see that kind of thing is a real problem anymore, and comparison to some of the people I've seen like myself or worse it isn't. I'm sick of being at people's mercy, I'm sick of being a victim in need of saving every day that's just the way it is until I find someway to stimulate my cord that's what it is. I just want to be able to utilize my own determination, resilience and strength to find a way to work with this injury and in time away to treat it. But instead I have to just lay around and rely on other people, utterly trapped and helpless no matter if I am optimistic or pessimistic that's the way it is, no one shows up I stay right where I am and they can all ways use that against me and there is nothing I can do about it, bye do about the point where they want to leave I'm fully willing to starve, rot rather than fucking baggive them their way right or wrong just because they're the able-bodied...

Every injury impact differently the pending on the vertebrae damaged, after that the severity of the trauma/timing of surgery/many other factors in the first 36 hours ends up with or without different function based on severity. And after that everyone's body reacts differently, sum end up with no nerve pain , And flaccid paralysis with others are being constantly burned alive invisibly and have to choke back pills and tie themselves down just to remain in one position, others end up with a bladder with no pressure no problems, others end up with an excruciatingly high-pressure bladder that increases care given and causes chronic infections, just to name a few examples. After that something all of us never really touch base on so let say you take to C4 injuries both completes one has always been a computer enthusiasts that's his passion, the other was on his way of professional motocross of some kind. All things said and done the athlete loses more, as he can't pursue his passion even remotely,The computer Guy can pick right back up with his computers, a little more difficult but he still can at least flirt with his passion somewhat. When I think of this I think of the 22-year-old professional rugby player, ended this life or the end of million-dollar baby! And it's relevant to my situation because I got this annoying in complete injury preaching at me, like talk about the betas revenge haha it's not that his injury is less severe, that he does most of his care on his own that's part of it, but he is a massive film enthusiasts that's all he did before his accident, and that's what he does after it! I understand many people aren't as lucky, and move on and find something else even still, I'm just sick of people thinking they know what's best for others just because of the disability; and at the same time completely disregarding their individuality! Haha TVs frozen, cannot remotely reach the changer and I guess my body has to P now, going severely dysreflexia I'm not waking anybody up it's not worth it not remotely that's gimp life got to pick your battles I guess forget rights, you think you have rights because you get a ramp everywhere. must be nice to be a lower less severeinjury straight up if that's the only thing holding you back in terms of entrapment your golden... OK pathetic rant over, this help me calm down because truth be told if I could've moved either myself or the person pissing me off would've been in serious shit, nothing wrong with a fistfight to settle things nobody will hit me anymore though for fuck sakes, I digress
Just can't stand it

Does Anyone Drive A Honda Element?

lundi 2 mai 2016

I was thinking about buying one as our second car. I looked at a few before (I think they were first generation Elements) I liked a lot about them (mostly the suicide doors to make putting the chair in the back easy) but It seemed like a High! transfer and also like the seat was far from frame of the car. Can anyone tell me how hard of a transfer it is? I was thinking of getting one and putting some coil over shocks (lowers vehicle) and some low profile tires (also lowers vehicle) to make it easier for me to transfer into. Also, Are there any notable problems that you have had with it. I have heard they are pretty dependable vehicles. I am hoping to find one with low miles, as they no longer produce them. Or one with a recent engine/transmission replacement if it has high miles. Anyway.... I would appreciate any input from owners/past owners. Thanks in advance. :)
Does Anyone Drive A Honda Element?

1960 Ford Fairlane - show winning, multiple magazine featured full custom car F/S...

nj/nyc area... asking 23,000 or best offer... must sell as much as i hate to....

this is likely a long shot as vehicles for sale on disability forums don't seem to get much interest....perhaps someone disabled [or non-disabled] looking for a kickass set of wheels just might see this and want to buy my beautiful kustom....
i'm placing this ad on a couple of other disability related forums as well...

i have to sell my beautiful '60 fairlane kustom ride as i'm no longer able to transfer in/out of it on my own...i'm just getting old and physically deteriorated and need to sell it to get funds for another cool set of ol daily driver wheels which i can still use on my own without help...

i'm a c5-7 quad but have been so since 1990, am 50 y/o now and due to being grounded in bed/house for the past 5 years [first a festering pressure sore and a subsequent surgery, then a crash when a tour bus plowed into me] i've lost a lot of strength/ability and thus no longer can use this killer ride in a practical sense... i guess any para will be easily able to transfer into/out of it without issues, or a highly mobile quadriplegic...or someone with a disability [or no disability at all of course] which makes him/her comparable or more able than the above....

the car has a bench seat and that makes all the difference for me now... while i can still drive it easily and transfer from my chair into the car's seat and vice-versa, i'm no longer able to grab and stow my wheelchhair behind me, nor take it out an unfold it.... i looked into changing the seats into custom buckets on a swivel base but decided that what i really need now is a ride i can use 365 days a year in snow/salt, not a custom; especially since i had tto sell my other ride recently, a '36 studebaker dictator coupe hot rod which i've owned for 20 years....

if you're looking for a killer set of wheels for show AND to drive whenever-wherever, this is your ride and i'm selling it at a fraction of what it would cost to build on order [over $80k]...hell, the paintjob alone would cost $20k if you can find someone who even knows how to properly shoot the tricky lacquer/technique without runs, orange peel flaws, etc.....
if you don't like to be constantly gawked at by other folks on the road and chased down to be asked what your car's year/make is, etc. you don't want this ride....it creates a lot of attention anywhere, from freeways to parking lots and anywhere in-between when i drive/park it....


the car is built to be timeless, along the old school styling of early '60s customs...there are no 1-800 catalog parts on it except maybe for tires, everything is one-off custom built...it has class and oozes tradition, it'll still be cool long after the newest trendy rides with silly huge 22" rims and rubberband tires will become passe....it was built for a famous hot rod and tattoo artist [with a strong connection to metallica's james hetfield] by his car club brother, a hall of fame custom car builder and painter....

there's just too much to type here about this custom ride, i'm including a 'flyer' [instead of trying to upload a bunch of pics] with small photos and basic info just to get the basics here as a file below....if you're seriously interested, please contact me for more details/pics...
it has undergone an extensive customization/fabrication process from ground up [the build lasted from 2008 to 2010] which includes the extending of the trunk/moving the rear roofline forward by 9", extending of its rear fins by 2", etc. reshaped/radiused wheel wells, custom molded-in floating stainless tube grill, for perfect proportions, etc., etc...virtually every part of it was modified from factory henry f. metal... of course it has shaved door handles and locks [magnetically activated] and other such custom touches....all using traditional old school metal working fabricating techniques....

engine, transmission, rear end, etc is from a restored 1967 for mustang fastback....

car is in excellent and absolutely 'drive anywhere' condition... i've recently added an aftermarket 'vintage air' a/c system to the car and converted it to power brakes....only the fuel gauge doesn't work [likely needs new sender].... a custom made, top of the line '4 season/waterproof' outdoor car cover [with cable and lock] from 'california car covers' comes with it...

i also have a classifieds ad which includes detailed info and about 37 pics of this ride on hemmings.com and hopefully i'm allowed to place links to other sites here:
http://ift.tt/1TsoHO8

if links to other sites are not allowed, mods/admins please siimply delete the link above from this post rather tthan the entire post....

this ride has won trophies/awards but the most significant one is a 1st place win in its class at the legendary GNRS show in 2010 where it was entered right after its build was finiished...
it also had full photo/article features in 4 different major hot rod/custom magazines, including "rod & custom" magazine and an exclusive full magazine cover with a pin-up model ["traditional rod & kulture" magazine]....it's rare for a car to be featured in a single mag and every owner dreams of it, this ride was featured in 4 mags between 2010 and 2012, including a full cover....

the car currently has my 'drive-master style' push/pull hand controls and a steering wheel 'palm grip' with ability for driving both by either disabled driver, or a non-disabled one via standard pedals....can sell wiith or without controls...

strongly prefer a buyer relatively local to me from new jersey/new york city area [i'm in northern nj, about 30 minutes drive from manhattan/nyc] because i don't want the hassle of dealing wiith long distance shipping it via car carrier...i purchased it from kansas myself back in fall of 2011 [and put less than 250 miles since]...
however, if you live far away but can arrange for someone to come and inspect this car for you then arrange yourself for its shipping, i don't care where you're from and how far you live from me of course....

cheers, jerzy....
};->
Attached Images
 
1960 Ford Fairlane - show winning, multiple magazine featured full custom car F/S...

Frog Legs Caster Issue?

I bought some used 5" Frog Legs casters, and was surprised to see on one of them a couple small holes,and a 3rd smaller pinhole below the other 2. (My current casters are a bit too big, they'll catch at times on the footplate if I'm turning) Are these things at the end of their life, and should not have been sold or if not how much more time do you think they have left on them? I paid $38 for them, and I'm wondering if I should return them because of the holes. :thinking: Hopefully the pic will upload. ;)
Attached Images
 
Frog Legs Caster Issue?

Help: finding part, carpenters, engineering, do it yourself types etc.. crib baby

Hi,

Looking to modify a crib for a baby, ran into this Youtube video and looking to copy the idea of using the sliding door hinge thingy.

Been googling for ages and cannot find this type of hinge thing.
Anyone have any clue what the technical name of this is. or better suggestions etc. similar but different to a heavy duty tool box drawer extenders.

Fast forward to the 5:12 mark to see the crib and it's sliding action

Thanks.

Help: finding part, carpenters, engineering, do it yourself types etc.. crib baby

Signs that you may have not made the best choice in aides

Somehow, we have the feeling that many of you may be able to relate to our latest article. We spoke to some mobileWOMEN and compiled our top 10 list of ?so crazy that they are comical? indicators that the wrong helper was hired. Check it out! We'd love to hear your stories..
http://ift.tt/1SJBJXJ
Signs that you may have not made the best choice in aides

Occasional odor in my nose

Every once in a while I'll get kind of a sweet/fruity odor in my nose. It will just suddenly be there and then goes away minutes later. Any thoughts on what it could be?
Occasional odor in my nose

Luis Rey Downs on Saturday Next start

Luis Rey Downs on Saturday Next start

High Iron & Migraines?

Posting this for someone-

My son's iron is up to 1900. He came home from work today almost blind with a migraine. His iron has been up to 3900. We are trying to him into a gastro man to write the order to be bleed. The blood bank will not accept a written order from his primary.. which I don't understand since he is the one to discover the high iron.

It dawned on me that perhaps the high iron was causing the migraines. Can there be a connection?

Thank you
High Iron & Migraines?

the biggest adjustment the defending Eastern

the biggest adjustment the defending Eastern

Looking for some OCR software

My mother passed away recently and is surprising what kind of stuff you find after 60 years of accumulation.

My dad had the ultimate Swiss Army knife it had a stapler (we found the replacement staples also) and a tape measure. I guess it's the white-collar Swiss Army knife.

Mom wrote a book that I never knew about and would have to put it circa 1962 in Alaska. It is hard to read though because there are 140 some pages single spaced and no paragraph Breaks. I will attach a page that will fit.

From a cursory three sentences read, I've taken it as a love story on the Eastern front.

What I need is reliable software package or a service that will convert the scanned pages into a text document. Does anyone have experienced or recommendations?
Attached Images
 
Looking for some OCR software

Test Subjects Wanted

This is a first for me. While reading through the Sunday paper, I spotted an ad looking for people willing to participate in an SCI study. It just struck me as an odd way to go about recruiting people. If you are curious, their website is SCIResearchStudy.com. I know nothing about the people involved and the website says nothing about the researchers.
Test Subjects Wanted

We are here to help!

Hi everyone!
I'd just like to take a few minutes of your time to show you what Push Nation Fest was this year and what it does for the paralysis community.
The video, that you can find with the link below, shows what we did for everyone who attended and also what was offered at the event. A lot of resources for anyone on a wheelchair were there for anyone who wanted to know more about what they can do about their situation, or just learn more about the new technology. We've partnered with organizations such as Project Walk Orlando and CORE.
We are here to help! If you have any questions/comments feel free to email us at: info@pushnationfest.org.
Have a great day!


Video Link: http://ift.tt/1TqLNVu
We are here to help!

United Spinal ad for UTI Research

dimanche 1 mai 2016

http://ift.tt/1ToKztU

They are thinking that Lactobacillus instillation may help with UTIs
United Spinal ad for UTI Research

Boundary skin

I'm wondering if others experience this and if anyone has a way to mitigate or minimize it.
I get area of skin at the boundary between my able and paralyzed body (I'm T7 so about sternum level) where I get this scrambled sensation of pain, itching, tickling, heat all at once. Lidocaine lotion has minimal effect.
Boundary skin

with a loss of ?37m in 2015

with a loss of ?37m in 2015

Chinese carmaker Qoros has joined

Chinese carmaker Qoros has joined

Toe Sore

I am wondering if anyone has any ideas on how to heal this sore on my big toe? It was a blood blister or looked like one for almost a year, it finally lost some skin off it and then it all came off (little help from me). That was almost 2 months ago, I have been using Med-Honey but its not getting any better. It has some clear, and bloody drainage. I was using a soft boot for the first month or so but didn't notice much of a difference.Here are a few photos taken yesterday. Any help would be greatly appreciated.
Attached Images
  
Toe Sore

FES bike for complete quad 3 years post. Would it work?

I'm C5 complete 3 years post and and never tried a FES bike or any other kind of electrical stimulator on my legs. I'm considering in buying myself the device and use it in conjunction with my MotoMed. But now I'm worried that after the three years of not moving my leg muscles if they'll still be able to contract.
Any complete there that used a FES bike for the first time years after being injured?
FES bike for complete quad 3 years post. Would it work?

Since then 39 nests with a total

Since then 39 nests with a total

Weirdest UTI yet, which antibiotic?

samedi 30 avril 2016

Here's my test results, I've had it for 2mths, took Macrobid, seemed good, cleared up. Stopped Macrobid, next day instantly knew horrible fish smell and milky urine. Never has a uti smelled this gross fishy smell ever! Took another sample in and this time it's not sensitive to Macrobid. In your experience what is the best antibiotic for this weird uti w/Beta-lacamase"


I have never taken any of these antibiotics listed before for a uti. it's a weird one?

Any thoughts? Please & Thanks.....

Dr. phoned, but I missed call, now not open till Monday.

Final
Organism 1 1) ESCHERICHIA COLI OVER 100 M CFU/L
- Susceptibility testing of this organism indicates
production of a broad-spectrum beta-lactamase.
This isolate may be clinically resistant to all
penicillins and cepahalosporins. Follow infection
control precautions as prescribed by your
institution or hospital.



Antibiotic Susceptibility
Org1
Ampicillin
R
Cephalothin/Cephalexin
R
Cefixime
R
Ceftriaxone
R
Meropenem
S
Ertapenem
S
Trimethoprim-Sulfa
R
Ciprofloxacin
R
Gentamicin
R
Tobramycin
I
Amikacin
S
Tetracycline
R
Nitrofurantoin
R
Fosfomycin
S



Weirdest UTI yet, which antibiotic?

Monster AMA RD16

Monster AMA RD16

Quad hand, might this help?

I gave up on my left hand years ago, it was so tight and curled up I thought it was a lost cost. I found a series of videos by a quad on youtube about hand therapy. I only watched one of them and have been stretching my left fingers for several weeks and have seen improvements, my fingers have loosened up and I can even move them a little. So of course I will keep stretching them. I was thinking there might be something to help me along, on amazon I found several interesting things by searching finger stretcher but not sure what would be best. Thoughts on this? http://ift.tt/1YYERmp


Thank you
Quad hand, might this help?

Old threads

I remember the forums going through a few upgrades over the years, and I seem to remember a post or notice about this before, but did some posts go missing / get deleted between one of the upgrades, or were they just moved elsewhere? (This was prompted by me remembering posting a thread a while back that I can't find at all anymore)
Old threads

Permobil R Net brake error

My M300 has started to give me problems. For the third time in the past few weeks I was out in my back yard and my chair abruptly stopped when a wheel hit a hole. My R Net mono display flashed an exclamation point and then displayed "Brake Error."Through trial and error I found that by powering off, disengaging the brakes, rocking the chair a little, and resetting the brakes the problem goes away. It is a real concern right now because my right forearm is in a cast, and I cannot reset the brakes. I have to call for help. Is this problem normal? My good tech moved away and his replacement does not have a clue as to what is causing this. I tried replicating the problem with someone standing by to help but it will not do it then. Arrrrgh!
Permobil R Net brake error

For Sale: RT300 FES Bike, Colorado Cycle, and Flaghouse weight lifting System.

RT300 FES Bike was manufactured in October 2010, in excellent condition, $8500.

Colorado Cycle $350.

Flaghouse weight lifting System $250.

Free pick up, or you pay shipping, my zip code 14213. Fell free to call at 716 886 2391, or to send me an email to xsun405@hotmail.com.
For Sale: RT300 FES Bike, Colorado Cycle, and Flaghouse weight lifting System.

the blankets over while trying

the blankets over while trying

I collect SSDI and work part time. Made lttlel too much..What will happen?

So here"s my situation. After my accident 32 yrs ago,which rendered me a C6 quadriplegic, I was on SSD for few years till I got a job. I worked full time till few yrs ago when I had surgery for a pressure sore. I started collecting ssd then and continued after I went back to work part time. I was earning under the amount allowed and continued to receive ssd checks every month. The most you could make in 2015 was $1,090. It is up to $1,130 for 2016. I submitted all my pay stubs 2 months ago. Yesterday I get a letter saying I made too much for quite a few months and not eligible to receive for that month. Some months I made $2.00 too much and others up to $40. I did submit all the co pays for Dr. appts and prescriptions.. They sent them back and say they need statement from Dr. that they were needed to be able to work. Some months I had no co pays. So what will they do? Will they take the check for that month?
Also,I get paid every other week, 2x a month. I've been confused how they determine how much you make a month and can't get clear answers from them. I work about 18 days a month. I've been told that they go by when you work and how much you made during the days in that month. Others told me they look at the amount they deposit in your account regardless of when it was earned. So if I got pd Apr. 8th, a week of that I earned the previous month.
They also take into account $ spent for caregivers. Most of mine was paid by ins...but I did pay cash some months for a little extra help.. will they consider a signed receipt by a caregiver?
Sorry to ramble on here, but a lot of these questions I can't get answered till Monday. I thought I'd put this post up in case anyone had any similar experience or could awnser any questions I had.
Thanks much
I collect SSDI and work part time. Made lttlel too much..What will happen?

Right Flank Pain

For about 8 days now I've had right flank pain. No chills, fever, or nausea. (do have diarrhea) Urine is fine, though not feeling the urge as much as normal. I haven't been as hungry either. The pain when it started was sharp and quick. When I'm sitting up I don't feel it as much (just like a dull ache). However when I lay down it hurts so much I can't take deep breaths. This has caused me to not get very much rest so I'm tired.

I'm not sure if this is muscular. It very well could be. I do have a history of back pain, though right now my back does not hurt other than its stiff in the mornings. The other day I did stretch over my cars console to open the door in the back. But like I said this pain started about 8 days ago.
Not sure if I should go to urgent care?
Right Flank Pain

the atoms of the cells two electrodes

the atoms of the cells two electrodes

Best Places To Travel During Summer

vendredi 29 avril 2016

The United States has a lot of beautiful places to visit when the weather is warm. Summer always brings out the best in cities around the country. In this article you will learn about the best places to travel during summer. It's a good thing to know where to travel during certain seasons.


Miami Beach in Florida has some of the best weather during summer. Walk through the sand, shop at the nearby shopping centers, and enjoy fine dining all within walking distance from your hotel. Miami Beach has a lot of fun night activities such as drinking and dancing. Young couples that want to take their first trip together can make this trip a memorable experience. Families can also have loads of fun by visiting the local attractions, spending a full day at the beach, and eating great food all over the city.


Pismo Beach is a beautiful place on the west coast of California. This beach is a few hours north of Los Angeles. A lot of people overlook this beach but it is a great area to spend the weekend with your family. Within a reasonable distance you will also find convenient camping, hiking, shopping, and dining. Explore a part of California that is often overlooked because of San Francisco and Los Angeles.


New York is always a better place when the weather is warm. Throughout the winter months out of the year it can be very difficult to deal with New York. At some point in your life you are going to want to be in New York Time Square during New Year's Eve, but until then visit this city during summer. Take a tour of central park, go to the Empire State Building, and make sure you see the Statue of Liberty. New York has an almost endless amount of new things you can do. On every visit get New York styled pizza. A trip to New York is not complete if there is no authentic pizza involved.


Chicago is not as windy during the summer. The Windy city has the harshest winds towards the end of fall, during winter, and in the beginning weeks of spring. Once summer rolls around it is not that windy in Chicago. You can take a tour of the city an visit Millennium Park, Museum Campus, Paseo Boricua, and Humboldt Park.


Try to road trip one year during the summer. You will find a road trip around the United States one of the most rewarding experiences in your life. Try to visit as many states and cities as possible. Everyone has his or her own taste on which cities are the best. By taking a tour around the nation you can figure out which state you like the most. After you have your list of top places to travel then you will know locations around the United States to visit. Try to expand your traveling to international waters after you have explored the United States.
Best Places To Travel During Summer

How often will medicare cover a new chair once you have a Dr. prescription?

I think its every 5 years, but I think I remember them changing the time limits. Curious because I am still using my 10 year old manual chair. I did get another one about 5 years ago, but I never use it. The "wheelchair dealer" screwed up the measurements so bad that it is seriously uncomfortable to sit in. I rarely use it except for when its down for the count with a flat or something like that. I argued with that dealer for soooo long. They finally took it back and gave me back a supposed new one withe exact same measurement problems six months later. Seriuosly, you should see how badly this chair fits me. Its almost laughable if it wasn't so sad and aggravating. HA! to think they still send me a 300$ bill every month or 2 for the 20% that medicare doesn't cover. OOPS.. sorry I am Ranting. haha. Does anyone know how often Medicare will cover a new chair? And yes, I am gonna use a different dealer this time.
How often will medicare cover a new chair once you have a Dr. prescription?

Equipment providers?

United seating & Mobility is now Numotion. Who else is available that does this same thing of getting chairs to folks..? They completely cut Invacare chairs out of their product supply ordering & that's the chair I like & use.. Has anone had similar issues of having to change chair vendors or whatnot.?
Equipment providers?

Used Accessible Vans on Ebay

I like to search for vans nearby, just to see whats available.

It amazes me when I copy and paste the Vin into google and find horrifying salvage photos of what looks like a cream puff now.

On Ebay sometimes it states Rebuilt, but hardly ever Salvages.

Just thought I would pass this on.
Used Accessible Vans on Ebay

Need diapers,enemas,and condoms and sex toys

Hi all of y'all i been needing youth diapers any size and cathodores, for my incontinence and any size will work , also if you have any condoms thouse will be nice to, and vibrators and other anal and penis sex toys . Please. My address is



steave wilson
1617 10th ave
rockford il
61104 thankyou
Need diapers,enemas,and condoms and sex toys

Battling for oxygen at home

Yesterday my pulmonologist recommended standby oxygen in my home as my oxygen levels have not been where they should be. I use bi-pap overnight and naps but have been very tired for past 3 weeks or so. The doctor said using the oxygen at setting 1 would help me during the day - using maybe an hour or so.
They faxed the order to the business handling my bi-pap supplies. Two hours later the doctor's office called me to say the company would not provide the in-home oxygen as my test showed I didn't need it. (My pulse/oximeter reading at home is usually between 85 and 91, and read 87 in the doctor's office).

Just wondering if anyone has encountered this....that is, a medical supply company refusing to provide something like this, probably due to Medicare reimbursement to them.

I recently went through 4 months trying to get a certain bi-pap machine replacement (after they told me mine was so old that the water chamber was no longer available). They then provided me one with no alarm for escaping air, and I would not use it or accept it and had them take it back. They said they could not provide one with an alarm. I then met with my pulmonologist who somehow got them to recognize my neuromuscular diagnosis (Polio paralysis) and need for the alarm in addition to a "back-up rate" (which provides a little burst of air if a person doesn't take a breath), and the company then called me to say "you are now in a different category and we can provide a different bi-pap machine with an alarm and back-up rate". (The alarm on my old machine only kicks on when there's an air leak or if I fail to take a breath.)
Why didn't they tell me about this "different category"; their therapist had been to my home twice and knew I was paralyzed.

I am in the process of having the pulmonologist's office re-check the information on the prescription which was faxed to the company. The doctor had clearly told me and my husband that I should try to get the oxygen delivered yesterday or today!
Battling for oxygen at home

Im going crazy and want to walk infront of a bus

Ive hv spent 6 going on 7 years trying to get help with dealing with my pain I hv done everything I could to fix or at least get to a point of tolerance surgery injection s tens units medical marijuana pain meds the only thing that has helped or at least made it so I can maintain some what normal life is opiate s the medical marijuana has helped me sleep thank god but the docs cut out the opiate s completely I cant use the marijuana during day at all it just makes me want to sleep and I try to maintain my job with the help of intermittent family medical leave act but now with the mmp I cant get a long care pain management doctor to bring me in if I dont get help soon im going to kill myself seriously I cant handle it I need to be able to live a some what normal life and that was the only thing that helps me to do so and now I cant get help because we hv politician dictating our treatments over seven years I was only tk 15 mg Percocet and 50gm morphine sulfate not to bad considering if anyone knows someone in south jersey are that will tk in new patient plrase help because if I dont get the help truly needed im dead real soon and to all u fakers who has caused all us who are truly in pain to suffer more because of it I hope a house falls on u so you can get a taste pf what we hv to Indore do to your foolishness
Im going crazy and want to walk infront of a bus

Whill Model B

jeudi 28 avril 2016

I mentioned this early last year, and stopped following it because, at the time, I didn't think power chairs really mattered to me. After hearing all this talk about saving your shoulders though, I took a quick gander at it again, and it seems they've come out with a second model that HAS gotten FDA approval.

I haven't seen it mentioned on here in search, so I'm curious if anyone's taken a look at it, or tried buying one, and whether or not insurance has actually permitted this? I suspect most insurance companies won't, and will cite one of the existing meh power chairs instead.

Edit: Sorry, Model M, rather. Link here.
Whill Model B

First wound in 42 years

Well, it's finally happened; got my first wound on the inner cheek of my right buttock. We think it was from a new mattress we bought. It wasn't as firm as our old one so when I went to transfer on the bed, my hand would go into the mattress rather than lifting my butt out of the chair; dragging my ass over the wheel. We exchanged it for a more firm custom mattress.

Went to the wound clinic last year and seemed to have healed up except for a small pinhole. A year later it got worse.

Finally the wound doc said it was time to close it and had a plastic surgeon come into one of my appointments. He said it's not near any bone and has plenty of skin to clean and suture it closed rather than having a flap done. Then will spend SIX weeks either in the hosp. or assisted living in a Clinitron type bed 24/7. Then start getting back in the chair for a while. I asked him if I could go to inpatient rehab for a week or two after to learn new skillsets and how to transfer with a board. It's been almost 43 years since rehab for me. So one in that time is something I can't complain about but it's still frustrating as hell.

I just hope I can still use the stander and my handcycle when I get out; they keep me sane. Will have to get a padded shower bench I guess and a seating eval before I leave. I'm kind of at a loss on dme equipment needed to keep me independent as possible.

It's so surreal thinking about how I'll be bed bound for six weeks. Wish me luck and any pointers on spending the time or other suggestions will be appreciated. Will bring the uke along and learn some new songs ll.
First wound in 42 years

sodium docusate help

I need to know the max dose of this but cannot find it. i'm having horrible bowel issue, and i'm wondering if it coinciding with my increasing to 750mg a daywas coincidental. it's only been almost5 weeks since I was hospitalized with an ileus/bowel obstruction and i'm backed up again. i'm so freakin depressed and i'm sure that doesn't help.

btw since things got worse, 2 months now, I sometimes feel something, i'm assuming my intestines, on my right side moving around. what could that signal?
sodium docusate help

forward

seems lately I will be roling and my back muscles seem to cramp and want to make me go forward really uncomfortable I will try leaning back more but afraid of putting to much pressure on tail bone

I stretch prone at night 1/2 hour plus

ideas?
forward

For Sale.. Invacare Intouch Flovair cushion.. never used

Invacare Intouch Flovair cushion never used, came with my wheelchair but I have a custom pressure mapped Ergomedic cushion. Never used, 16 x 20. These retail in the $250-$275 range. Asking $175. Prefered and trying to sell local, but can ship no problem (charge at cost).

Also have an invacare walker 6291 A, With arm rest/platforms. Used a few times for standing, basically new. Retails for $150 Asking $100
Attached Images
     
For Sale.. Invacare Intouch Flovair cushion.. never used

Recommended treatment for recurring C diff

After a course of antibiotics, I came down with a lovely C diff infection. My doctor prescribed Flagyl, and it got rid of the diarrhea within a day. I was thrilled with how quickly it acted! After completing the 10 day course of Flagyl, I started getting gassy and putting out mucus with my stool again. I talked with my doctor, and he put me on another course of Flagyl for 14 days. Again, my bowel movements became normal within 24 hours.

5 days after completing this second course of Flagyl, the watery diarrhea has returned. It's got the unique stench of C diff, so I don't think it's any sort of bug or other antibiotics-associated diarrhea. I visited my doctor again, and he wanted to put me on vancomycin. He warned me that it is expensive, and sometimes it takes several days to get insurance to authorize it (if at all). Even if my insurance covered 80% of it, that would still leave a $200 bill for a 10 day course!

As my doctor predicted, my insurance didn't automatically cover it, so he prescribed me another course of Flagyl. Do I just need to suck it up and get the vancomycin, no matter the cost? Are there any other newer medications for C diff that I could consider?
Recommended treatment for recurring C diff