Condom cath - which is good for a day out?

jeudi 31 mars 2016

Regulary I use diapers, daily. But as I go out on summer for a long day, it becomes a problem. So, I'm looking for a legbag with a condom-style attachment. How to make sure it won't get off from my Buddy and leak me?
If you recomend me some products, then it should be available to order from amazon etc, because I live in Europe and shipping from States costs about millions :)
Thanks!
Condom cath - which is good for a day out?

T-12 Complete

Hello! I was injured Jan 30th 2016 with a burst fracture to my T-12. I had a "slight" compression to my spinal cord which left me at an ASIA score of T-10 A complete. After leaving in patient, I was re-evaluated as ASIA A T-11 with partial preservation of T-12 and I also had some L5/S1 dermatomes in my right foot. I was in in patient for about 6 weeks. It has only been about two months since my injury, however, I'm curious if there are any lower level complete injuries that have seen any hopeful recovery?
T-12 Complete

cuts Brazil credit rating to junk AFP

cuts Brazil credit rating to junk AFP

Citing both Alexander Hamiltons

Citing both Alexander Hamiltons

Acute Flaccid Myelitis infects more than 100 children in five months

mercredi 30 mars 2016

http://ift.tt/1SzKCoP

Sounding awfully familiar except I was 12 ...
Acute Flaccid Myelitis infects more than 100 children in five months

Pool lifts at hotels, most do not seem to work?

Have others experienced this? I travel quite a bit and find most lifts for the pools at hotels do not have batteries installed and when asked to get the lift working it's a big run around that generally ends up that the batteries are discharged from sitting around and the lift cannot be used for 8 hours. Other times the lifts are just broken and where never fixed, they just put them there so as to look that they were in compliance of the new regs that went into effect a few years ago.

Anyhow, anybody do any lawsuits over this issue? It is the law, I should be able to swim when I want at a hotel and not have to risk falling and breaking a hip or something getting in and out lowering myself from the wheelchair to the ground and bumping myself down the steps.

Sometimes they offer me a free nights stay as I think they are fearing litigation. I would have every right to take them to court and win as by not having the lift functional they are not in compliance. I've heard a lot of them will settle out of court for 4 or $5000.00. The big chains do sometimes let it go to court as they don't want to have too many people make a habit for easy money even though the hotel is breaking federal guidelines. I'm just debating how I should handle things with this issue in the future? I do like to swim and I do travel a lot. I am tired of at my age of having to bump myself down into the pool, use to do this more easy when I was in my twenties, but in my late 50's my body is not as flexible as it once was. One of these times it's gonna end badly with a bad fall. I notice after I ask about the lift and they can't get it working they generally send somebody down to watch me getting in and out of the pool as they get a little nervous. Generally this person will sit and read the paper or whatever and won't even ask to help.
Pool lifts at hotels, most do not seem to work?

Looking for EMPI NMES unit

Hi, the title says it all!
Looking for EMPI NMES unit

Live in NY, NJ, or PA and want to return to work?

I work with the United Spinal Association. We have a free program called "Pathways to Employment." We provide mentors, who are working people with spinal cord injuries, and a lot of information and resources about return to work. We have openings if you are interested in participating and you live in NY, NJ, or PA. Please contact me at bkornblau@unitedspinal.org.

Barbara
Live in NY, NJ, or PA and want to return to work?

Spinal cord regeneration might actually be helped by glial scar tissue (What the..??)

Dunno what to believe anymore! interesting read, check it out...

Spinal cord regeneration might actually be helped by glial scar tissue

Posted By News On March 30, 2016 - 5:30pm

Neuroscientists have long believed that scar tissue formed by glial cells -- the cells that surround neurons in the central nervous system -- impedes damaged nerve cells from regrowing after a brain or spinal cord injury. So it's no wonder that researchers have assumed that if they could find a way to remove or counteract that scar tissue, injured neurons might spontaneously repair themselves.
A new study by UCLA scientists now shows that this assumption might have been impeding research on repairing spinal cord injuries.
In a study using mice, Dr. Michael Sofroniew and colleagues found that the glial scar tissue that forms after spinal cord damage might actually favor nerve cell regeneration. The research, published in Nature, could ultimately lead to new approaches to repair catastrophic spinal cord injury.

"For 20 years, we have been applying technologies to prevent glial scarring in hopes of promoting nerve fiber regeneration, repair and recovery, but never observed a positive effect," said Sofroniew, a professor of neurobiology at the David Geffen School of Medicine at UCLA. "Now we find that disrupting glial scars actually harms nerve fiber regeneration that can be stimulated by specific growth factors."
The spinal cord is a thick cable of nerve projections called axons that course from the brain to activate muscles, and from sensory organs back to the brain to provide feedback. Unlike peripheral nerves, which re-sprout axons when they are damaged, mature spinal neurons do not regrow axons in the part of the body where the injury has occurred -- such as when the spinal cord is cut or crushed -- which results in paralysis below the injury.

Doctors have long figured that the major roadblock to recovery was the scar tissue formed by a type of glial cells called astrocytes. This is because, after injury, spinal nerve fibers do not regrow past such glial scars and appeared to be "stalled" within them. That thinking prompted the UCLA researchers to ask a simple question: If that were true, wouldn't preventing or removing scars encourage the nerves to regenerate?
To answer that question, the researchers evaluated two types of mice -- one in which specific genes could be switched on to prevent the formation of scars and another engineered with genes that could dissolve scars after they formed. Using fluorescent imaging, the researchers then traced individual axons to see if they would approach or cross an injury site if the scarring was blocked or obliterated.
In both cases, the axons showed no sign of regrowing through the lesion.

"This clearly refuted the assumption that getting rid of scars would permit spontaneous regeneration of injured axons," Sofroniew said. "In fact, it hinted that scars might play some sort of positive role."
The research also revealed glial scars' beneficial role in an experiment in which the scientists softly flog injured neurons into regenerating -- a strategy Sofroniew likens to a "carrot and a stick" approach. In either normal or genetically modified mice, neurotrophic growth factors (the carrot) are infused at the spinal injury site at the same time that additional lesions known to stimulate nerve regrowth (the stick) are applied.

Remarkably, in the normal mice, the approach stimulated robust regrowth of the stalled spinal axons past glial scars and through the injury site. Even more remarkably, the mice that were engineered to eliminate scars showed a pronounced reduction in this stimulated nerve regeneration -- and in some cases, none at all.
"This was a very surprising finding," said co-first author Mark Anderson, a former research associate in Sofroniew's lab who now is at Switzerland's ?cole Polytechnique F?d?ral de Lausanne. "Scar formation has long been considered the principal impediment to axon regeneration."

Joshua Burda, the study's co-first author and a postdoctoral fellow in Sofroniew's lab, said the finding could prompt a new way of thinking in the field.
"This paper may encourage some to shift their focus away from trying to decrease astrocyte activity, in particular in scar formation, and toward how to exploit it as a way to promote regeneration," he said.
The team also performed a biochemical screen to identify molecules expressed in scar tissue and discovered relatively high levels of factors that support axon growth. This shows that scars are capable of producing chemical signals, albeit faint ones, that permit axons to grow over them. Thus, future strategies for repairing the central nervous system might involve concocting even more potent mixtures of growth factors, like Sofroniew's "carrot," that could be continuously infused or implanted near a patient's injury.

Burda noted that the finding might have been downright predictable had researchers been thinking in terms of evolution.
"Maybe it's not surprising that a highly evolved central nervous system wound response, such as scar formation, would play a crucial beneficial function in both wound healing and axon regeneration," he said.
Added Sofroniew: "Techniques used in mouse models cannot be applied today in patients. But our work is an important scientific step toward developing strategies to get nerve fibers to regrow across severe spinal lesions. It opens the door to an area of research that has been inhibited by incorrect dogma."
Source: University of California

SOURCE
Spinal cord regeneration might actually be helped by glial scar tissue (What the..??)

Dr. Wise or others Comments on MRI scan for syrinx

I have been having an increase in spasticity, which may be due to a lower back problem that I have been experiencing. I thought that it would be wise to rule out a syrinx as a possible root cause of my problems and the neurosurgeon that I was seeing agreed. I have posted an image of the MRI scan with the T2 hyper intensity at c1-c2, my original injury site. It has been six years since my injury, and this is the first scan of the site since then. What do you think about the scan? Thank you for your time.
Attached Images
 
Dr. Wise or others Comments on MRI scan for syrinx

Mini Van Seating

We purchased a Chevy Venture Van as a spare and to use on road trips. The plan is to be able to switch the drivers seat from side to side so I can drive from my chair via Ez Lock then switch the passenger seat over for an AB driver. Right now the Ez Lock is on the drivers side and I use straps to tie down while I'm a passenger.

The problem is the seat base on the captains chair is very difficult to move. The base has the floor plate attached for an AB driver but it attaches to the floor with 4 round pegs that drop into 4 holes in the floor then it needs to be muscled forward till it locks into place. Also removing it is very hard, it sticks in place and takes a lot of strength to remove and move to the other side.

Does anyone else use this system? Does mine just need to be cleaned and adjusted? Or should I get another Ez Lock for the passenger side and find a different seat base for the chair? Is there an easier way to do this?

Here is the base I have.
Attached Images
 
Mini Van Seating

Lateral Rotation / Turning Mattress, any personal experience?

I am considering the purchase of a Lateral Rotation Mattress and was wondering if there's anyone here that can share their personal experience? How well do they work? How comfortable or uncomfortable are they? Any specific problems to consider?

Other than the Span of America model, are there any other manufacturers offering a mattress with a pendant remote control for the user?

Thank you
Lateral Rotation / Turning Mattress, any personal experience?

Are there any durable voice recognition headsets?

I am looking for a durable voice recognition headset. I am a quad and in bed on my back nearly 24/seven. Everything is run by computer using voice commands, my TV, lights, heat, telephone, etc.. Two thirds of the time I am wearing the headset. I find that the MIC line generally begins to break down within a month of use. Basic commands will still work but dictation deteriorates from recognizing sentences to only a single word. Eventually the break in the MIC line is so bad that simply turning my head will trigger a close or open command. I am replacing the headset every 2 to 3 months.

Anyone have any suggestions? I have avoided the wireless headsets, constantly changing batteries is not something I can do on my own and does not seem practical. Are the high end professional headsets any more durable? It seems like I've tried most of the products under $100.

Thank you.
Are there any durable voice recognition headsets?

More surgery?

mardi 29 mars 2016

I previously had an mri due to increased pain. I had my c5 c6 fused in September 2014.. Im scared that my only options are surgery again... Opinions. Im going back to my neurosurgeon but not until may

MRI OF CERVICAL SPINE

HISTORY : Increasing neck pain and increasing right upper extremity pain and numbness.
Suspected radiculopathy. History of anterior fusion.

TECHNIQUE: Routine departmental protocol. Comparison with preoperative MRI on 4/8/14.

FINDINGS:

Foramen magnum: Within normal limits.

C2-3: Within normal limits.

C3-4: Relatively small, broad based left posterolateral disc herniation/osteophyte complex,
new since the previous exam. Associated mild left lateral recess and left C4 foraminal
stenosis. No compromise of the central spinal canal or right C4 foramen.

C4-5: Mild disc bulging without compromise of the canal or foramina.

C5-6: No evidence of complications post anterior fusion. No compromise of the canal or
foramina.

C6-7: Moderate broad-based left posterior and right posterolateral disc herniation/osteophyte
complex. Associated mild right lateral recess stenosis and severe right C7 foraminal stenosis.
Moderate to severe left lateral recess stenosis with mild displacement and minimal compression
of the cord. Borderline central spinal stenosis. These findings are new since 4/8/14.

C7-T1: Within normal limits.

Upper thoracic spine: No significant findings on sagittal images at the T1-2 and T2-3 levels.

Cervical cord: Within normal limits.
Impression
IMPRESSION: New left posterior/right posterolateral disc herniation/osteophyte complex at C6-7.
Satisfactory postoperative appearance of the C5-6 level. Additional findings described above.
More surgery?

Hyperbaric Chamber FOR SALE

I have for sale The Grand Dive 40", 10' long portable chamber, by Summit to Sea. Asking $12,000, picture attached. Contact me if you're interested.
Attached Images
 
Hyperbaric Chamber FOR SALE

Guldmann DH 2000 ceiling lift for sale in Asheville, NC

Hi all, I have a Guldmann DH 2000 ceiling lift for sale.
It comes with a single 8 ft rail, and mounting hardware and has a lifting capacity
of 175 kg. It works great and made my caregiving so much easier.
I live in Asheville and would prefer to sell it locally, but will
consider shipping it. $750.00
Guldmann DH 2000 ceiling lift for sale in Asheville, NC

Mattress for prevention of pressure sores

I know this is a basically a FAQ that has been posted many times, but things change and sometimes people are looking for something a bit different, so:

I am looking for a mattress to help prevent pressure sores. I do not have a history of them, but have been getting increasing redness after lying in one position for a few hours.

Tempurpedic works well, but their mattresses only last a few years if that. I think I am too heavy for them (250).

I do not like the kind of mattress with pumps or motors, as they are noisy and a bit creepy.

I do not care about shear or transfer sores, just pressure sores from being in one position for hours.

I see Invacare makes a mattress, anyone tried them? Also Supracor, but theirs is over my price range.
Mattress for prevention of pressure sores

Special Offer for CareCure members from GO! Mobility Solutions

Use promo code "March" for $100 off on a GO-Anywhere Commode 'n Shower Chair - Self-propel. You can also use "EG50" for an additional $50 off. They'll work through Friday.
Special Offer for CareCure members from GO! Mobility Solutions

Uti

T-4 30 years post. I intermit cath. Four weeks ago I began to get incontinent and I took 10 days of Cipro. 5 days after taking the Cipro I was incontinent and sent in a urine sample and my doc put me on 7 days of Amoxicillin 500mg twice a day. 5 days after taking the Amoxicillin I started to get incontinent again. Took up another urine sample and now the doc puts me back on Amoxicillin same dose for 14 days. Got a feeling 72 hours in to this round that this is not working either. Urine still cloudy and still incontinent. Normally no sensation when bladder is filling but can feel that i'm about to be incontinent with 100cc in bladder. Is it possible I'm immune to Amoxicillin or could something else be going on? Have not really had many UTI's over the past 25 years.
Uti

Ogo

Self balancing hands free wheelchair http://ift.tt/1Rp6vYO
Ogo

Terrible Nerve Pain Down My Arms....No Answers Yet

lundi 28 mars 2016

So I have been experiencing really bad nerve pain down both my arms. First it started in the right arm, and then several years later started in the left. I have been dealing with the pain for at least 10 years now and have seen numerous doctors, but nobody can seem to figure out why. I have been a para (T-6 complete) for almost 20 years now, but the pain didn't start til well after. It is very similar to the sensations I "feel" in my legs. Just constant pins and needles and burning sensations. Had an MRI which showed narrowing in my cervical spine that was pinching my spine. It seemed like that just had to be the cause, so I of course elected to have surgery, but unfortunately it didn't do any good. Has anyone been experiencing pain like this at all? I am desperate to find the answer! I have tried several different meds to try to tolerate the pain (opiates, lyrica, neurontin), but the only thing that can even put a minor dent in the pain is the opiates. I would greatly appreciate anyone's feedback!

Thanks,

Kevin
Terrible Nerve Pain Down My Arms....No Answers Yet

Stats

Just scrolled to bottom of page for 1st time. It's no wonder the site had to be restructured just to defend itself, which lends credence to just how much of a job it is to run a social forum site! Or this place would be a disaster. So props to Mods & Techs..121,000 spam members denied registration, just recent!

Other stat I saw is there's an equivalent of 10% of U.S. populace w/ a SCI - related - or other, if I'm correct. There's 350,000+ members on board here! Sure census has risen from the 300 Mill mark through the years but just rounding..
Which just got me pondering the other biggie currently incurable dilemmas.

Generally incurable and ongoing, chronic diseases affect approximately 133 million Americans,
representing more than 40% of the total population of this country.
By 2020, that number is
projected to grow to an estimated 157 million, with 81 million having multiple conditions.
About half of all adults have a chronic condition, and approximately 8 percent of children ages 5
to 17 were reported by their parents to have limited activities due to at least one chronic disease
or disability.
More and more people are living with not just one chronic illness, such as diabetes, heart disease
or depression, but with two or more conditions. Almost a third of the population is now living
with multiple chronic conditions.
In 2009, 7 out of 10 deaths in the U.S. are due to chronic diseases. Heart disease, cancer and
stroke account for more than half of all deaths each year. According to the New England Journal
of Medicine, people with chronic conditions receive only 56% of recommended preventive
health care services.
Q. What is the economic impact of chronic diseases?
More than 75% of all health care costs are due to chronic conditions.
Four of the five most
expensive health conditions (based on total health care spending in a given year in the United
States) are chronic conditions ? heart disease, cancer, mental disorders, and pulmonary
conditions.
A 2007 study reported that seven chronic diseases ? cancer, diabetes, hypertension, stroke, heart
disease, pulmonary conditions, and mental illness ? have a total impact on the economy of $1.3
trillion annually. By the year 2023, this number is projected to increase to $4.2 trillion in
treatment costs and lost economic output.

Wow--As you read or saw SCI is not included & for those who have done the math know the expense of treating us over a lifetime & the savings otherwise on the other side of the coin which is why/how SCI is majorly overseen!!
Then again in the eyes of the Death profiteers we are just that, another STAT..:gloomy:
Stats

Van/car conversion know how

I've figured out/ found the good going Sure Grip hand controls kit n all that.
Have a ghetto soccer mom van the seat is fixed for quick unbolt n yank, that's where I'm figuring.
Obviously there should be some lock down device in floorboard otherwise I've done some slipping around in back w/ others driving having to break suddenly, w/o tie-downs in so that happening while me driving not good.
Is there auto lock "tie-downs" for this?
Van/car conversion know how

Garcinia Cambodia

Have any SCI people tried Garcinia Cambodia for weight loss? I've read about it lately and wondered if it actually works.
Are there any dangers in trying it? (side effects / medicine conflicts)
Garcinia Cambodia

How to manage Heterotopic ossification

For the past 18 months I've had some extreme physical changes in the past two years. In October of 2014 I began to have back pain that felt like a lot of pressure in my lower left back. It also feels like an extremely tight muscle. I thought it was a Baclofen issue and actually had a Baclofen pump placed and only created more issues. I've had it removed and am back where I was a year ago, recently I asked for a ct scan of my hips because my dad and brother have bi lateral necrosis of there hips. This is how I found out about the HO. Im waiting for my bone scan to be scheduled. I'm going to go inpatient for two weeks for physical therapy.

My my left hip has 10 cm of growth and the right has 12 cm. I'm hoping there is some advice out there that will help me manage this so I can get my life back on track. The range of motion I'm doing is not cutting it. Pain meds only dull it/me. Are there any suggestions out there?

Thank you so much.
How to manage Heterotopic ossification

Question for the SCI Nurse

I am a C4-5 quad 21 years post-injury. Over the years I have experienced mild to moderate AD , usually due to UTIs. Last year I had two surgeries due to an anal fistula , and am healed of that problem. Earlier this year I had a seizure and spent three days in the hospital for MRIs and CAT scans that were normal. Lately I have had bouts with AD several times daily to the point my shirt is completely wet with sweat. Toenails are OK , bowels are normal , and a urine culture showed no growth of bacteria. I had an ultrasound last year that showed no stones in my kidneys. Any suggestions would be appreciated .

Thanks,
Ken
Question for the SCI Nurse

Welcome to WIKI

The 139th Boat Race took place on 27 March 1993. Held annually, the Boat Race is a side-by-side rowing race between crews from the Universities of Oxford and Cambridge along the River Thames. Cambridge, using "cleaver blades" for the first time in the history of the race, won by three-and-a-half lengths in a victory that was described in The Times as "crushingly conclusive". The winning time of 17 minutes exactly was the fourth fastest time in the event. Cambridge's victory prevented what would have been write my essay Oxford's seventeenth win out of the last eighteen races, which would have levelled the overall score for the first time since the 1929 race. Oxford's crew featured two Olympic gold medallists and saw changes in their rowers and cox in the lead-up to the event.
More
http://ift.tt/16kwqqf
Welcome to WIKI

Story about my study

Strong composition producing and analysis abilities are essential for fulfillment within high school graduation and also higher education. One common type of dissertation can be an article analysis article. Its purpose would be to measure the ideas or arguments presented from the write-up. Usually these works consist of an introduction, a minimum of about three helping lines along with a conclusion. Each and every dissertation should have any well-stated dissertation that informs the various readers what to prepare for from the remaining portion of the papers and also sound investigation to aid your dissertation. Look at write-up and also take notes with your essay at heart. Even if you read the content once by now, read it once again to consider paperwork. Highlight important paragraphs while looking for connections as well as think significantly in what you're studying. Record the responses within the prices or even on the blank sheet of paper. Investigate other sources to compliment your current essay's aspects and also to gather ideas. Conventional responses have already been written about a lot of school posts. They may have ideas that you can use to secure a further comprehension of this article you are submitting regarding. Visit your library or even make use of an on the internet academic data source to get recommendations.
Story about my study

Story about my studi

Strong composition producing and analysis abilities are essential for fulfillment within high school graduation and also higher education. One common type of dissertation can be an article analysis article. Its purpose would be to measure the ideas or arguments presented from the write-up. Usually these works consist of an introduction, a minimum of about three helping lines along with a conclusion. Each and every dissertation should have any well-stated dissertation that informs the various readers what to prepare for from the remaining portion of the papers and also sound investigation to aid your dissertation. Look at write-up and also take notes with your essay at heart. Even if you read the content once by now, read it once again to consider paperwork. Highlight important paragraphs while looking for connections as well as think significantly in what you're studying. Record the responses within the prices or even on the blank sheet of paper. Investigate other sources to compliment your current essay's aspects and also to gather ideas. Conventional responses have already been written about a lot of school posts. They may have ideas that you can use to secure a further comprehension of this article you are submitting regarding. Visit your library or even make use of an on the internet academic data source to get recommendations.
Story about my studi

building network

Rightnow, I write project network development for coffee shop system. I need information for this feel. have anybody had any experience?
building network

Any good recommendations of a table top arm bike for a paraplegic?

dimanche 27 mars 2016

Trying to get some good cardio in, and the gym I started going to only has one cardio machine that I can use and it's not always open. Looking to see if maybe any of you have had any luck with a tabletop arm bike and which one?
Any good recommendations of a table top arm bike for a paraplegic?

Microsoft shouldnt force the update but it really

Microsoft shouldnt force the update but it really

Restorative Therapies (RTI) RT50 4-Channel Stimulation Kit

Selling a Restorative Therapies (RTI) RT50 4-Channel Stimulator Kit. This kit is wireless connecting and communicating to the RTI stim bike via bluetooth. This kit will allow you to add 4 additional channels of stimulation to your existing therapy. Kit is 100% complete and working.
Comes with the (4) RT50 stimulators, (4) RT50 stimulator chargers, (4) stimulator to electrode connector cables, and (1) AC power adapter to charge the RT50s. You would only need to provide your size electrodes you use.
This kit will only work with you already having an RTI stim bike to establish the connection and communications to. I can provide assistance connecting this 4-channel kit to your RTI stim bike making them available to add-on the additionally 4 channels for muscle stimulation to your therapy.
Asking price is $3200 shipped

When we used this kit the therapy parameters were:

Stimulation Cable Channel 1 = Left Quadriceps
Stimulation Cable Channel 2 = Right Quadriceps
Stimulation Cable Channel 3 = Left Hamstrings
Stimulation Cable Channel 4 = Right Hamstrings
Stimulation Cable Channel 5 = Left Gluteals
Stimulation Cable Channel 6 = Right Gluteals
RT50A = Left Tibialis Anterior
RT50B = Right Tibialis Anterior
RT50C = Left Gastrocnemius
RT50D = Right Gastrocnemius

PM me we any questions.

[IMG][/IMG]
[IMG][/IMG]
[IMG]
Restorative Therapies (RTI) RT50 4-Channel Stimulation Kit

removal from Thorns care

removal from Thorns care

announcement by Pope Francis on Tuesday

announcement by Pope Francis on Tuesday

excited when Amazon referred to itself

excited when Amazon referred to itself

Strategies for turning in bed

samedi 26 mars 2016

Please forgive me if I asked this already and lost it. Itwould change my life if I could turn myself in bed. Has anyone an idea?

Strategies for turning in bed

Mind over matter

This is not a positive attitude, self-healing thread. Butwhen your hands can?t quite do it, can you Zen yourself over the hair in youreyes, the itch on your nose?
Mind over matter

Educating my dumb TV

My 1991 25? ProScanhas always served me loyally. We decided we didn?t care much if we did not riseto the occasion of the widescreen transition. But does anyone know if there?sany way to get it to play programming from my computer, or hook it into Amazonprime? Could I get Netflix?
Educating my dumb TV

Wrong size rim tape sent.

Sportaid sent me 25" rim tape and new 24" inch tubes and Marathon Plus tires. My husband thinks he can "fit" it together. Is this a mistake? Help! Thanks!
Wrong size rim tape sent.

Help - Spot on Toe

Good afternoon everyone ! I have a situation that I'm looking for help with on. Last night, my caregiver noticed a red area around my big toe on my left foot (sorry- zoom up to see better). She noticed upon waking up that the same spot on the skin looked much less red. That was great news. I wanted to get everyone's opinion on what they thought of my toe / nail. Thank you in advance !!!



I believe I acquired this by having shoes on incorrectly and getting my toe bunched up in the shoe for a prolonged amount of time.



Notice the small dark circle on the nail.

-Colin
Help - Spot on Toe

Ease Cushion / ROHO w/SmartCheck /Aquila SoftTech

Hey all,

C-5/6 Quad here, 37 years post, looks like I'm looking at my 3rd Flap, and am currently recovering from a Stage IV Pressure sore on the Ischial. Currently in bed on a WoundVAC. I've had pressure mapped foam cut cushions up until now and over time they seem to compress, and the sore starts returning, putting me back in bed to heal. Started with High Profile ROHOs, and moved to custom cut pressure mapped assisted foam cushions.

I've been thinking about the EASE Cushion, The Aquila APk2 or SoftTech to assist with my weight shifts. I checked out reviews, scoured the forums, and googled until my eyes bled. After I heal and get back into my chair, I've got to find a better alternative to what I am doing, so I'm reaching out to try and get some straight facts from users of the cushions.

I've seen some issues with some of these cushions in relation to how much meat is covering the Ischial, I'm 6' 1" 200lbs and not much meat left down there.

Looking for anyone who has had both positive and negative experiences with any of these cushions, or other suggestions.

On a side note, has anyone gone as far as just sitting on a pressure mapping system all the time, since that would seem to be the best real time way to see if there are any issues. You'd think someone would whip up an iPad app or something at this point that can visualize the data.

Thanks in advance,

Hawk
Ease Cushion / ROHO w/SmartCheck /Aquila SoftTech

TiLite 2GX/Aero X on ebay- questions

Hi all, I'm looking for a folding backup chair and I'm considering these 3 TiLites on ebay. I've posted some questions/concerns below, and would appreciate any feedback as well as any potential red flags you see on these chairs.

2GX: http://ift.tt/1WQw59n
I like this one the best (because of titanium and neutral color) but 2 concerns-
1) there seems to be a large gap between the footrests that my feet could fall into,
2) it has a 90 degree front end with 6" casters - I know TiLite's order forms don't allow you to choose this combo- is this because the casters are likely to hit my feet?

Aero X, bright green: http://ift.tt/1WQw713

Aero X, camo green: http://ift.tt/1WQw715

On all three, I'm concerned that the seat-to-footrest is short at 13-13.5. My lower leg length w/ shoes is 16", so I guess I'd need at least a 3" cushion (I'm planning to buy a cushion anyway, not use my current one on a backup chair).

I would like the option to foot-propel indoors. Is there anything, dimensionally or otherwise, I should keep in mind for this?

Lastly, I'd plan to add sideguards and anti tippers to any of these.

Thanks for any thoughts.
TiLite 2GX/Aero X on ebay- questions

Ford Explorer, rowheels

I was reading the April issue of Paraplegia News and came across a couple of things that I was not familiar with. First BraunAbility is now making a lift equipped Eord Exyplorere:
http://ift.tt/1PwZAqJ

And this really boggles my mind. Ever have that feeling that you do not know if you are coming or going? Watch the video here:
http://ift.tt/1pP1yhQ
Ford Explorer, rowheels

Nissan GT R Blow Snow with Exhaust Flames

Nissan GT R Blow Snow with Exhaust Flames

Java Tutorial

hello all... i m new to this site, & i would like to share my views for the education of JAVA, from a past few months i m learning Java. its a very good site and examples are so good here. if you want to learn java so visit this website www.javatpoint.com.
Java Tutorial

plutonium to the Savannah River Site

plutonium to the Savannah River Site

Comedian Garry Shandling dead at 66.

vendredi 25 mars 2016

March 24, 2015, Comedian Garry Shandling dead at 66. Mr. Gary Shandling played a small role in this film Love Affair (1994). His part is in the middle of the trailer.



RIP


Ti
Comedian Garry Shandling dead at 66.

The Best Men

Great movie about the start of wheelchair sports in England during WWII. If you are paralyzed, you need to watch this. The Stoke-Mandeville Games were the very beginning of wheelchair sports. The German physiatrist treating British veterans reminded me of Dr Heiner Sells at IRM during my rehab in 1070.

I started wheelchair sports in 1971 playing wheelchair basketball in Queens, NY for the Bulova Watchmakers, our coach Ben Lipton. My friend, double above knee amputee Fred Francis got me involved. He was a great natural athlete and drove a big Ford station wagon. He would enter from the rear window, toss his body into the rear of the wagon then pull his 55 lb E&J wheelchair into the rear. He would vault above the middle seats into the driver seat. Later, my wife and I played for the Laurinburg Knights of St Andrews College in Laurinberg, NC. After relocating to Mi we played for the Flint Flyers. We then started wheelchair road racing in 1983 and continued to 1985.When we stopped competing in race chairs We continued for a decade recreationally with handcycles. In our 70's now we are thankful we have a powerful history of physical activity.

Although we are all gimps in truth we are Olympic class athletes as we function so far above our limitations.
The Best Men

Speedy Lift, XL-Seat, Ford Transit Connect Wagon compability (or HI-LIFT)

I've been planning my switch to a more adapted vehicle...I've been injured over 18 years now, and I have a bad arm (various torn ligaments & ruptured muscles, non-union shoulder separation, "messed up" elbow) and my job requires that I visit several job sites most days. I don't want to spend all of my energy loading & unloading my chair every day, and I don't want to avoid activities because it's too much hassle to load one more time (and the work stuff is unavoidable). I'm working with DVR to get help with funding for the equipment, but I have to buy the vehicle myself. They are having me work with a driver rehab specialist.

Anyhow, I was all set to get a Ford Transit Connect Wagon (which is what they call the passenger version of the van - it's the same vehicle, just with a finished interior), and I found out that the XL-Seat doesn't work with the 2016 model. I'm unclear if it works with the 2015, but I know it's been done (spoke with someone at Sanderson Ford in Arizona a few months ago). Another company is making a kit that will allow the XL-Seat to work, but Adapt Solutions doesn't recommend it. One possible issue is the amount of leg clearance that it allows. I'm fairly long-legged, so this is a concern for me. I can't tell if this is just politics, or if Adapt Solutions really doesn't think the kit is a good product. Does anyone know more about this?

I am capable of doing the transfer info the driver seat without a XL-Seat, but I'm worried that it's a bit far once I'm inside the car to hook my chair onto the Speedy Lift hook (the HI-LIFT is also an option, but you have to have the XL-Seat to do it). I also think that over time that transfer will be harder - with various safety features (yay for safety!) the gap between the door and the seat is getting to be bigger - I transfer better on the passenger side because I can push off with my good arm.

So I'm feeling stuck. I like the Ford, and it's a lot more affordable than a full-size mini van. We test drove one and it feels smaller than a full-sized mini van as well. I currently drive a non-adapted Honda Element, which is great fun to drive, very small and maneuverable. We will keep this car for my partner to drive, as we both love it. I think the Ford would be about 6' longer than my car, which is wild to think about!

I know that the Mazda 5 is an option, but since they've stopped making them they're a bit hard to find...we'd prefer a higher trim level than the Sport (which we currently own, and I hardly ever drive because I don't like it). The closest Mazda 5 with "Touring" trim level (mid-range) is about 800 miles away, which makes it hard to check out. I don't like the seats, I don't feel supported in them, and I don't love the feel of it when driving (for example, when I ease off the gas on my Honda, it slowly slows down...the Mazda is much jerkier and more sensitive).

So are mini vans now my only option? They are quite a bit more expensive than the Ford T.C.W. (at least $3-6K depending which features we pick). I don't care about the "image" of a car, I just care about the function. I like vehicles that are easy to see out of, easy to drive, and don't require an engineering degree or an advanced understanding of physics to park in a small parking garage (I live in the city). I started to get excited about a van when I looked at some of the fun options that come in the nicer trim packages, but wow are they pricey! One of the nice things about a van versus the Ford would be that power doors are usually an option (not an option with Ford).

I'd love some advice! It's been a difficult process to get used to the idea of the fact that I need more equipment in my life, I prefer to keep things simple, but I want to save my muscles for the fun stuff. :)
Speedy Lift, XL-Seat, Ford Transit Connect Wagon compability (or HI-LIFT)

Diaphragm Pacer

I'm a 38yo c3 quad that was injured in 1994. i was on a vent when first injured for 6 months. I've been vent free 21 years but lately i been in so much pain around my torso i can't stand it. it is all new sensations that started last 2 years and is getting worse. If fees like i can contract muscles at will around my abdomen and rib area. feels like when i breathe with my diaphragm that i and contracting my oblique muscles as well making them work against my breathing. doctors have no clue. been using bypap at night which use to help but lately doesn't seem to. cant sleep. any ideas ? have you heard of this. i'm affaid i might be fighting a loosing battle.. scares me to death. can someone with a diaphragm pacer eat and drink with one?
Diaphragm Pacer

Tens unit...

I apologize if this post isn't in the right place. My injury is C6 C7 incomplete ,i suffer with chronic hand pain , I just recently saw a new neurological doctor just to ask questions and make sure things were okay , I told him that I borrowed a tens unit and it really seemed to help , I was very disappointed when he told me I shouldn't use one. Has anyone else been advised not to use one? :banghead:
Tens unit...

Free Mat Table - Very Good Condition 7 x 4

We have a Sammons Preston Mat Table. My husband used to use it for therapy, such as lying on his stomach and ROM, etc. However, he doesn't use it anymore and we could use the space. It is in very could condition, very sturdy. It can fold up to the wall, but we never had the part that you need to attach to the wall. I am sure something could be rigged up. We have always kept it down. Pics are included. It is very expensive to purchase but it is free to anyone who wants to come an get it. Atlanta, GA area.
Attached Images
   
Free Mat Table - Very Good Condition 7 x 4

Catheter Emergency in Raleigh, North Carolina???

Good morning!

I drove down to Raleigh from Baltimore yesterday and realized that I left my bag containing my catheters. Could anyone direct me to where I might be able to buy catheters for the weekend in Raleigh, North Carolina? If so, please email me mikeinbmore@gmail.com.
Thanks in advance
Catheter Emergency in Raleigh, North Carolina???

Levator Ani syndrome anyone?

jeudi 24 mars 2016

Well after several doctors and shit loads of tests and scans my relentless 'burning butt' mystery has been dx'd as Levator Ani syndrome. I first posted about it here. Turns out the Levator Ani muscle is in a perpetual state of spasm. Just curious if anyone else is dealing with this hellish existance...it's fairly common among wheelchair bound patients. There no cure or remedy...just treatment with shock therapy and meditation...at least it can help the able bodied.

More about it here: (the first and last parts mostly)

http://ift.tt/1pL16Bb

----------------------------------------------------------

Here's some cliff notes:

-SITTING IS UNCOMFORTABLE OR UNBEARABLE

-CONSTANT OR INTERMITTENT PAIN

-TESTS REVEAL NO DISEASE

No disease can be found with conventional medical testing and the doctor typically has little to offer other than pain medications

-WORKDAYS LOST

A significant number of people with this kind of rectal pain miss work or school

-DEPRESSION AND ANXIETY

Depression, anxiety, and a severe reduction in the quality of life is common.

-NO CONVENTIONAL TREATMENTS RESOLVE THIS SYNDROME

There is no conventional medical treatment that reliably resolves this condition

-TENDENCY TOWARD ANXIETY

Patients with levator ani syndrome appear to have a general tendency to anxiety

-RESULTS FROM YEARS OF CHRONIC TENSION

As we discuss in our book and in the articles we have published, these painful muscles are the result of years of chronic tension of these muscles and at the point of pain, the patient cannot voluntarily relax these muscles

-HIGH PRESSURES INSIDE INTERNAL ANAL SPHINCTER

When pressures inside the pelvis are measured with manometry, the pressures inside the internal anal sphincter are often elevated

-SITTING, BOWEL MOVEMENTS, SEXUAL ACTIVITY, OR STRESS CAN AGGRAVATE

Pain may be aggravated by sitting, bowel movements, sexual activity and stress.

----------------------------------------------------------------------------------------------------------------------------------


Levator Ani Syndrome: Sitting pain

Sitting can trigger or exacerbate discomfort/pain/symptoms

Sitting is one of the great sufferings and scares in pelvic pain and makes all aspects of normal life difficult

Sitting pain makes one acutely aware of how sitting is the center of social and work life

Sitting pain usually starts out milder in the morning but after sitting through the day, there is increased discomfort that can last into the night

Patients often look for the padded seats in a restaurant because sitting is so uncomfortable

Sitting pain can make it miserable to sit with friends or family and socialize

Sometimes patients have to go on disability because they can?t work because their job is a sitting job

Sitting pain is one of the symptoms that raises the fear that you might not be able to work or function

Most patients endure sitting pain and deal with the increase of pain during the day

--------------------------------------------------------------------------------------------------------------------------

Levator Ani Syndrome: Ct Scan, MRI?s, Xray, and other tests fail to detect anything problematic in those with muscle based pelvic pain

What is disconcerting to many patients with chronic pelvic pain syndromes is that the conventional medical testing including imaging, blood and urine tests fail to document any abnormalities or point in any therapeutic direction. Conventional medical treatment including antibiotics, alpha blockers, anti-inflammatories, and all surgeries and procedures tend to fail in helping symptoms as well


Levator Ani Syndrome: Benzodiazepines temporarily reduce symptoms when first used

The family of drugs called benzodiazepines can often relieve symptoms for a few hours and are helpful when used skillfully
Benzodiazepines are addictive and when used regularly for pelvic pain they can lose their effectiveness
Benzodiazepines typically make the user tired and should not be used when driving or having to be alert


Levator Ani Syndrome: Anxiety and catastrophic thinking

The most difficult part of pelvic pain tends to be the catastrophic thought that it will never go away
Most patients who have chronic pelvic pain are preoccupied with their pain
Anxiety and catastrophic thinking distracts patient?s attention away from life and paints an unacceptable picture of the future


Levator Ani Syndrome: Sleep disturbance

Sleep disturbance is common
Patients either wake up to urinate or because of pain and anxiety
We wrote a paper about precipitous rise in cortisol in the morning amongst pelvic pain patients


Levator Ani Syndrome: Stress increases pain

Ordinary stresses as well as extraordinary stress tend to increase symptoms
When stress has triggered pelvic pain, the stress tends to triggers the tension-anxiety-pain-protective guarding cycle that continues after the stress has gone
Helplessness and hopelessness is the real suffering with chronic pelvic pain
Helplessness comes from a patient?s inability to stop the pain/discomfort that is draining and scary
Hopelessness in pelvic pain patients arise when they can?t see anything on the horizon that might help them or change their circumstances for the better
Levator Ani syndrome anyone?

Shaking - Sudden onset whole body

C3/4 Inc injury... 10.2003 Living and surviving ok, I am ex-wife. He called me this morning with uncontrollable shaking with sudden onset at 10PM last night and it comes and goes. Any ideas?
Shaking - Sudden onset whole body

Failed urine test. Now what?

So my urine tested positive for cocaine during my appointment with my pain specialist this morning. I haven't touched it in over 3 weeks so I'm really surprised... and bummed... and consequently pretty pissed at myself that I let this happen. In the 7 or 8 years I've been seeing this doctor and acing his tests, there's never been any reason for suspicion or distrust, so I'm pretty sure, at present, that he's giving me the benefit of the doubt that it was a false positive. He did however tell his admin to "send it in to the lab".

My understanding is that the lab can perform a more stringent analysis and is far more accurate... as in, if the lab says it's positive, it's positive... not false positive. Is all that accurate?

Assuming the worst and the lab does report back positive for coke, is there a standard protocol for what my Doc will do? I'm thinking, the next time I talk to him about this topic, I should stop denying and admit to "trying" it once a few weeks back. Will he request a hair sample? If so, he will learn that it was not an isolated incident. He will also see that I smoke weed and engage in other party favors such as MDMA from time to time.

I realize that all ties with all this fun stuff must now be severed. I am fully capable of and have no objections to doing this.

Anyone have any ideas regarding what comes next when the lab results come back? Suggestions for how forthright I should be regarding my usage of the aforementioned substances? Do I need to act sad and remorseful or will just being myself, admit to making poor decisions, vow to end it all effective immediately... yadda, yadda....??

I know there's nothing I can do about at this very point in time, so I'm trying not to freak out too badly. But I think I would feel a lot better if I knew what to expect next, good or bad. As such, any insight, wisdom and/or guidance would be greatly appreciated.

And I don't mean to sound dick-ish in saying this, but if you plan to respond so that you can pass your judgement on to me, inform me of how stupid am or anything along those lines, I'll thank you to kindly keep it to yourself. I'm a big boy and well aware of all that... and know there will be consequences to face.

Thanks in advance!!
Failed urine test. Now what?

No Fooling ... Open House April 1st!

Check it out-

http://ift.tt/1Ro7vc4
No Fooling ... Open House April 1st!

Chia seeds- Help with constipation

I haven't seen this tip before so am hoping it might be useful for others here.
I'm a C5-6 incomplete quad, 45 years post injury. Neurogenic bowel and bladder.
Fulltime manual wc user since 2006. Chronic bp problems, esp. constipation.
A friend from Peru noticed my weight gain/bloating over the past year and told me about
a Peruvian method of using chia seeds for relief from constipation. The daily use method she recommended
is to add 3 tablespoons of organic chia seeds to @ 80 oz. water in a capped pitcher and shake well
until the seeds have separated (they clump together otherwise.)
The seeds quickly form a viscous coating that takes a bit of getting used to,
so add some fruit juice to your glass of water/chia mix if you don't like it.
Try to drink this throughout the day, shaking it up before pouring each time to suspend the seeds in the water.
I've been trying this since January and the results have been fantastic for me
and for my particular level of bowel malfunction. I buy the bulk organic chia seeds online. They have some added nutritional value as well.
I'm sure part of the benefit is from drinking all the water, but the gelatinous seeds are apparently great at moving things along in the gut
and keeping stool from being hard.

I know that extra fiber isn't good for some SCI chronics, so don't use this method if you should avoid extra fiber.
Chia seeds- Help with constipation

Roho Sizing.......

I am currently recovering from flap surgery. My current Roho Contour Select Cushion is no good. I'm getting pressure areas (red/dis colored skin) on hip area now while sitting for only one hour.
It's sized 17.75 X 18.5.
My question is. If I purchase the Roho Quadtro Select High Profile (I pressure mapped well on this cushion in same size as I mentioned my current cushion is) it was the only size they had available for me to borrow while inpatient for therapy.
I want to purchase the Roho Quadtro Select High Profile but in size 17.75 X 20.25. Would the 20.25 be a another row of cells? Instead of 10 cells long,(front to back) at 18.5. The sixe 20.25 would be 11 cells long? The width would be 9 cells, 17.75.
So my final question is. 17.75 X 20.25, would make the new cushion 9 cells wide by 11 cells long? I have 4" easily of a gap between back of knee and front of cushion currently with this Contour cushion. I want to add another row of cells so that gap is substantially smaller, giving more surface area to sit on.

Thanks for the replies!
Roho Sizing.......

(WANTED) Free-wheel

mercredi 23 mars 2016

I am looking to purchase a Freewheel.

unfortunately, the price from the local distributors is disgusting... its like 500+ tax!

any suggestions where I can get a cheaper one? used or new.
(WANTED) Free-wheel

SmartDrive MX2 is absolutely TERRIBLE

I recently upgraded my Original SmartDrive to the newest version, MX2; which has bluetooth wrist band and integrated battery.

I don't know where to begin with my thoughts here... but overall, I am very unhappy.

#1) the absolute most important thing to me is battery range/distance. i used to get 13-18KM per charge on the older version. Now, with this new version, I've measured it over the past week and the SmartDrive ALWAYS dies by 8-10KM. This is absolutely terrible for me. I cannot get from A to B and then back to A.... I used to come back home at the end of the day with some charge left-over, but now with this new version, I run out before I get home!

I'm pissed because the MANUAL states that the new SD (mx2) is technically faster and has a larger battery capacity... but in my real world testing, that appears to NOT be the case, at all.

#2) the wrist band is really annoying. First of all, it's an extra thing to charge. I have so many things that need charging already! Secondly, I used to like the old SD's "outdoor" mode which would leave the motor engaged until I pressed the button; this allowed me to push manually IN ADDITION to the motor, which allows me to get around pretty fast. However, in this new version, if I try to push along while the motor is engaged, 50% of the time it recognizes my pushes as tap-gestures, and therefore stops the motor. Which is extremely annoying and defeats the purpose of "power ASSIST"

Also, it's really annoying to wear a wrist-band. I should have the option to do buttons like the previous model or use the wrist band. It's annoying because I wear a fitbit or a watch at all times, so this is just an additional thing to wear, charge, remember, etc.

---

overall, I can live with all the changes..

EXCEPT the freakin' reduction in battery range!!!!!!!!! I am going to give it a few more days, and if the battery persists, I am getting the older version back.

--

anyone else have similiar issues? any suggestions? tips? solutions?



PS. Also, this version is much heavier than the previous version (since battery is integrated) and so it's that much more difficult to put on/off, but it's also more noticeable when you have it on and its off, since its so heavy and drags. Whereas, the previous model, when I turned it off, I barely noticed it was there.


overall, I am unhappy. The SMARTDRIVE has become an extremely important part of my life and I am heartbroken to know this new version doesn't live up to my expectations
SmartDrive MX2 is absolutely TERRIBLE

Supra pubic stoma w/skin breakdown

Hi:

Frist off, I'm a first time poster, so, hello!

My problem started when I had trouble changing my SP catheter over two months ago. I think my bladder was dry as a bone and it took a long time to get the new catheter in. Sadly, a week later the skin underneath got irritated and I went on antibiotics. A week after that a friction blister happened (somehow) below the SP site and got infected. I was scheduled with my urologist to enlarge my stoma since we had trouble replacing it. During the operation the Dr. decided to remove the infected tissue leaving a crater right below the SP site. For most part, things are almost back to normal but I cannot get the last bit to heal and the doctor says it's ok and most SP sites look like how mine looks now. Although, this doesn't seem right because for the last six years my SP stoma has looked perfectly normal with no irritating drainage or breakdown. His medical advice was, "you were luck". I have been in bed 99% of the time for the last 5 weeks and it won't heal! Is it normal for quadriplegics to sit up on SP sites that look like this or is my doctor wrong? Personally, it seems like a bad idea to me as my belly hinges on that spot and pushes the tube into the wound.


Many info/advice is welcome,
Chris.
Supra pubic stoma w/skin breakdown

My Daddy's Wheelchair (a boy's YouTube video about his daddy and his wheelchair)

My Daddy's Wheelchair (a boy's YouTube video about his daddy and his wheelchair)

near the original 12 spectacular limestone

near the original 12 spectacular limestone

treatment for stage 1 pressure sores

hello everyone, I have a stage 1 pressure sore on my Right rib cage that's been driving me crazy for several weeks now. I've been trying to stay off it but it's hard to do as I have a lateral support on that side of my wheelchair and can only sleep on my back and right side , FYI, I also have a small pressure sore on my back. what's the best way to treat these? I do have medi honey and was wondering how often I should apply it to this pressure sores? Also , does anyone make a mini donut cushion To help Cushion These pressure sores? I really appreciate any info you can provide as these soRes have been keeping me awake all hours of the night, maybe only averaging 2 hours a night for the past week. thanks!
treatment for stage 1 pressure sores

Hand controls into late model Mini Cooper/S?

mardi 22 mars 2016

Hi All,

I'm wondering if anyone's had success installing hand controls in a late model ('14-'16) Mini Cooper/Cooper S. I would need to install something in the style of the Monarch Mark IA. Any info appreciated.

Thanks!
John

C6 Incomplete
Hand controls into late model Mini Cooper/S?

Don't park your bike on the ramp and lock it!

Went to go vote last Tuesday and there were two bicycles locked to the ramp?s handrail. I told the girl at the desk to call security and have them removed. I come out and one guy was unlocking his bike from the hand rail. So I went back in and asked for security?s telephone number and I called them. The supervisor came down and took care of it.

Ti
Attached Images
  
Don't park your bike on the ramp and lock it!

Can I take off my handrims without taking off my tires?

Hey, I was hoping someone could help me out with this.

I only have one set of rims for my chair and I want to try spraypainting the handrims (they are well worn and making my hands black). I can get around the house okay just pushing on the tires without any handrims while I wait for the paint to dry, but I'm not sure how the handrims are attached on the inside of the rim. Basically it's going to be a huge PITA for me to get around if I have to take the wheel off the chair to paint it and let it dry.

So does anybody know if I can unbolt the handrims with these little nuts here and get the handrim back on pretty easily, or will the bolt fall off inside the wheel and I'll have to take the tires off to mount it back from the inside?

(i'm not sure I'm making that clear, but hopefully you guys know what I'm talking about)
Can I take off my handrims without taking off my tires?

Standing table - safe to stand after many years of unuse?

Hi.

I'm at T5 complete due to a motorcycle accident which occurred in July 2003. I have not used my standing table for many years, but would like to start using it at least weekly. I have been told I have osteopenia and recently turned 52. Is it safe for me to use my table or will I run the risk of breaking something? My table does have leg supports from the knees down as well as back support. I have asked my doctor standing table questions over the years since my accident and have gotten conflicting answers by this same doctor. I have asked him if he thinks standing helps or is it just hype. He has answered this question yes to both on different occasions. Not having enough hours in the week and getting answers like this I slowly stopped using the table. Years went by and decided I wanted to start using it again. I asked this same doctor if it were safe to start using it again. The first time I was told no and that I could break something. A few more years went by and decided to ask him about it again and this time was told it would be safe since my table had leg supports which would help keep legs from twisting upon standing. I should have asked this forum years ago instead of waiting so long, but would still really appreciate any comments.
Standing table - safe to stand after many years of unuse?

Adding after market seat elevation to Permobil C300?

lundi 21 mars 2016

Hi,

My sons Permobil C300 does not have seat elevation, something he really wishes Medicare or I would pay for, but I don't hold out hope for either. I am finding seat elevation kits for reasonable prices.

Is there a reason I shouldn't have my handy mechanic-y friend attempt this? I guess I should add he does not have a back up chair.
Adding after market seat elevation to Permobil C300?

Transverse Colostomy question

dimanche 20 mars 2016

Hi all,

I have a question for someone with knowledge of or who has had a Transverse Colostomy.

I am a C7 with good hand function and I had my accident in Dec 1980 so I've stacked up a few years.
I had a Mid Transverse colostomy back on 16.Jan.2013 for quality of life reasons.
Those reasons being sitting on the toilet for 3 hours Monday, Wednesday and Friday and still wound up having accidents.
I was initially booked in for a normal sigmoid colostomy but when the surgeon got inside he discovered my descending colon was totally adhered to the left side of my insides and when he couldn't remove it he had to change plans and wound up doing a mid Transverse colostomy instead.
I've got no problems with my surgeon or the fact that plans had to change, its not an issue at all.

My question is simply.
Have any of you that have had a Transverse colostomy or maybe even a illeostomy noticed in the summer months your stool is quite firm?
The reason I ask is that until this summer I have had no change in the consistency of my motions which happens to be very loose to watery, due to the fact the water in my bowel hasn't had time to be removed by the bowel.
This year in NZ we have had a extremely hot summer due to a tropical cyclone in the pacific, we have had 33 degrees Celsius which is very unusual for this country.

Any comments welcome.
Cheers
Transverse Colostomy question

Mitrofanoff Leakage

Hey,

I just registered for this, and while I searched the forum have not really found anything that relates to it 100%. Thank you for helping me out.

So, since I was 12 I had a mitrofanoff (augmented bladder, with large intestine) and use a 12 Tiemann catheter.
I have a little-bit of leakage from the stoma (appendix to the bladder) and would like to know what are my options. It has been going on for quite a while now, and while it does not interfere much with my everyday life, it ruins my shirts and T-shirts sometimes (I have to wear padding or can't wear bright colors) and can cause discomfort for anyone being with me.

Is there a possibility that I might not need to have a surgery? I'd like to resolve it without as much interference as possible.

Could it be caused by the following?
- Tiemann catheter, hurting the appendix.
- Excessive consumption of coffee.

Also, besides washing out the bladder with solution, what might reduce the amount of mucus? Had a stone removal 2 months ago, and don't want to relive that. The docs said I should irrigate every 3 days, is that plausible or could I make it once a week?

Sorry for the barrage of questions, and thank you very much for your help.
Mitrofanoff Leakage

Help with buying a laptop

I haven't bought or researched computers (processor speeds etc) for around 4 years. I need a new laptop because the one I'm using isn't fast enough.
My current processor is a 1.70 gigahertz Intel Celeron B820.

I don't play computer games (aside from simple web-based games) but I want to multitask and use voice recognition. I don't want to spend more than $500 but want one that will do me another 4-5 years.

Any suggestions?
Help with buying a laptop

Electric Shocks

I have a variety of different types of SCI pain. Over the last nine months or so ? the severity and the quantity of electric shocks that begin to my feet and Shoot up to my mid spine have increased to unreasonable levels. I've tried a variety of different np medications without success.

Has anyone else had this type of pain? Doubt the point that I no longer can sleep more than an hour without shocks waking me up. My psychiatrist told me that she has never heard of this and that none of her patients have ever reported having this type of pain.

Noise is sometimes a trigger but not always.

It manifests similarly to this syndrome: http://ift.tt/1LzM3ny

Difference being is that the shocks originate in my feet and go to point of injury or lower back versus from neck to feet.

Any thoughts? Anyone else experienced this?

( forgive grammar and spelling...goal is to communicate and I don't have the energy to goal is to communicate and I don't have the energy to edit)
Electric Shocks

Need help with TiLite ZRa and Frog Legs Unitine

I have searched and read over a lot of threads regarding Frog Legs and the ZRa, and want to confirm something before I go ripping off my old caster forks. :geek:

I have a TiLite ZRa series 1 from 2008. My caster forks are the wide bearing type shown in this image:

I ordered the FL Unitines, and they shipped me what I believe is the correct fork, with two bearings in the fork assembly as shown in the right-most fork in this image:



I removed the caster and then removed the nut and washer attaching the fork to the stem (parts #13 and #14 in the upper image). From the TiLite image, it looks like the fork should just come right off. But it doesn't. It spins freely, and wobbles a bit with the nut removed, but doesn't come off.

Should I just use the awl/punch method to rip out the lower bearing in the fork since I don't need it anyway? Will something like PB Blaster help, or is there some kind of locking mechanism actually holding the fork onto the stem? Is there any risk of damaging the stem itself? I don't really care about the bearings in the TiLite fork or the fork itself, since I already have the FL Unitines on hand.

Thanks!
Need help with TiLite ZRa and Frog Legs Unitine

truly inspired 4x4s Jeep has debuted

truly inspired 4x4s Jeep has debuted

Wheel chair van

Since the Ford E250 is no longer available what are people using for full size vans? I am not a driver.
Wheel chair van

back with the dog on a lead running behind

back with the dog on a lead running behind

started playing an NPR News summary

started playing an NPR News summary

Vitamin D deficiency?

Ok...so I got my yearly blood results back....flagging a 13 for Vitamin D.

Could this be SCI related?
Vitamin D deficiency?

Frozen shoulder

Hi,

I do have arthritis and a frozen shoulder and I am thinking about an arthroscopic surgery.
I am asking myself if a surgery is the right solution or can I better try other threatments?

I had over one year physiotherapy, injections but nothing changed.

Does somebody has the same experiences?

Cheers,

Leosch
Frozen shoulder

Scientists at Rutgers and Stanford universities ....

...have created a new technology that could someday help treat Parkinson's disease and other devastating brain-related conditions that affect millions of people.

The technology -- a major innovation -- involves converting adult tissue-derived stem cells into human neurons on 3-D "scaffolds," or tiny islands, of fibers, said Prabhas V. Moghe, a distinguished professor in the departments of Biomedical Engineering and Chemical and Biochemical Engineering at Rutgers University.

And that may eventually help people suffering from Parkinson's disease, multiple sclerosis, amyotrophic lateral sclerosis (ALS), or Lou Gehrig's disease, Alzheimer's disease, spinal cord and traumatic brain injuries, and concussions, he said.


http://ift.tt/1RsQSRV


This is AWESOME! I believe 3D printing technology is the ticket to SCI cure, it is far superior to anything else that has come along thus far. Glad to see they're making such rapid progress with it.
Scientists at Rutgers and Stanford universities ....

Care Dimensions Palliative Care -> Hospice

samedi 19 mars 2016

Has anyone had experience with this corporation? I'm at the levels of extreme pain where my doctor suggesting this organization and I've had so many close encounters with the other side that it is not unreasonable to think that I may quickly or very slowly become a patient of Hospice. My only fear is to lose more control over my medical circumstances and my mind. I wish death with dignity legislation has passed in MA.

I'm not as frightened of death compared to how I'm going to get there.
Care Dimensions Palliative Care -> Hospice

Advanced platform technology center clinical trial

I'm participating in a trial at the advanced platform technology center in Cleveland Ohio. It is similar to the Cleveland FES center.
I am 5 years post injury with a c6 inc sci. I have about 50% sensation everywhere, decent hand function and core for my level and some slight movement in my legs thats not strong enough to be functional.

I had surgery on 3-2-16 for phase 1. I was the first person to have 2 newly designed 8 electrode cuffs attached to my femoral nerve. I have 8 lead wires coming out of each leg. We connected a electrical stimulator to the leads and got good quadricep contractions kicking my legs straight on stim levels as low as .8 MA. Some of the leads work my hip flexors too. Your quadriceps have 4 different muscles and different leads are working different muscles on mine. I currently have the stimulator at home using 1 lead per leg to work my quads. It has 2 exercises programmed into it, 1 for building strength and another for endurance. When I go back next week they are going to combine leads with the right parameters to get a more efficient contraction. We are going to test with this for 3-6 months before we continue to phase 2.

For phase 2 we will remove the external leads coming out of my legs and implant a 16 and 8 channel stimulation device with leads connecting to my standing and core muscles. With an external controller I will have programs to make me stand, step, pedal, sit with good posture and more.

Here is a link to the trial
http://ift.tt/1pAZrOC
Advanced platform technology center clinical trial

the smuggling arms race autonomous underwater

the smuggling arms race autonomous underwater

frogslegs caster forks on an RGK Hilite 2

Just tried to ask the new owners of RGK and they were useless. I'm hoping someone here knows. Are frogslegs caster forks compatible with a 15yo RGK Hilite 2? Is there anything I should be wary of?
frogslegs caster forks on an RGK Hilite 2

Why don't we have this?

vendredi 18 mars 2016

In U.K. they have this extra funds for living for disabled called PIP. Would be nice for us as well or do we have anything similar?

http://ift.tt/1kocXhP
Why don't we have this?

Ischial bursa abscess?

I developed a swelling near/on my right ischial on January 25, 2016. It grew in size and was very uncomfortable to sit on. I switched between my Ride (no pressure) and Roho (low pressure) cushions. On February 5 I was seen by an internist at the VAMC, not by my regular SCI doctor. He palpated it and said to "keep an eye on it" but offered no treatment options. It finally reduced in size and finally disappeared by February 20. Great!

Except it came back on March 4. It really is uncomfortable and about the size of a small peach. It's not red or inflamed, but firmly filled. I spoke with a nurse at the SCI Clinic at the VA and maybe I'll be seen on Tuesday, March 22, maybe not. I'm supposed to wait for a letter. If it doesn't arrive, then they'll gladly see me at my April 12 appointment. Needless to say waiting is a pain in the ass. I've considered going to a local walk-in to see if they'll just aspirate it for me, but I'm concerned about subsequent ulcers.

What can I do meanwhile? Should I ice it? Heat it? Puncture it with a knitting needle and finally get some relief? I've found that if I cross my right leg over my left, it alleviates enough pressure to make sitting my chair bearable. If I put a rolled-up towel under my right thigh it also provides some relief.

I'm taking no medications at all.

I appreciate any and all help. Thanks!
Ischial bursa abscess?

Weird skin bubble

This "bubble" appeared the day after my husband changed my sp catheter. It is red and raised, within the site of the spot the catheter is inserted. Any clue what it is or what i should do?
Any help is much appreciated!

Weird skin bubble

Any have Caregivers ++/a part-full time job combo?

Just wondering having say a part or full time job just to afford the extra income needed on top of SSI to live on own, how it meshes w/ caregive routine. Obviously they need sufficient hours to make a living, if u only need an hour in morning to get ready then say couple at night how is that supposed to work? That's not necessarily enough hours for them. I guess say they have other attendees you'd have to create a marginalized schedule for both..
Any have Caregivers ++/a part-full time job combo?

Private message for sci nurse

This "bubble" appeared the day after my husband changed my sp catheter. It is red and raised, within the site of the spot the catheter is inserted. Any clue what it is or what i should do?
Any help is much appreciated!
Kim
Private message for sci nurse

French security cordon off the area

French security cordon off the area

Looking for Bioness H200 and L300 (left)

Insurance just turned down our request to cover these devices, and $16,000 to buy them out-of-pocket is out of reach... so it's time for me to stop lurking and start looking for them used!

Looking for both devices for left side, and the H200 specifically in a medium.
Looking for Bioness H200 and L300 (left)

New TR3...upgraded everything

This is gonna be long, sorry. But I was very fortunate that between my insurance and vocational rehab, I was able to have this chair built to be as light and functional as possible. This is my second chair, I'm coming from a ZRA2 with all the standard options. Also, I'm a T6 complete.

I'll start by saying this was an incredibly frustrating process dealing with Tilite. In all it took 5 months. We would give them the info, and they would send the CAD drawing wrong. I would mark it up and sent it back, they would update it and sent it back wrong again. This literally happened 3 or 4 times. So I finally got a drawing that was correct, signed it, sent it back and waited. When the chair came in the cross bar under my seat was supposed to be 10" from the backrest and they built it at 15", and my casters were over an inch farther apart than the drawing showed. So I sent it back and they built me another one. The second one had the wrong camber plugs, one of the casters is floating 1/8", and the backrest folds at a slight angle. I'm currently trying to get this resolved on my own, as I'm tired of dealing with Tilite. I will definitely be looking at other options for my next chair.

Specs:

TR3
Titanium ergo frame with v-front taper
Titanium footrest
Titanium folding backrest
Titanium camber tube (couldn't go carbon w/ smart drive)
Titanium axles
Carbon fiber custom ADI solid seat pan
Carbon fiber side guards profiled to wheels
Carbon fiber ADI 10" deep contour back with fixed elite mounts
Carbon fiber backrest release bar
Zero play camber plugs
Surge handrims
D's locks with painted hub rings
25" Spinergy LX x-laced blue wheels with black inner spokes
Outfront glide single sided suspension forks with 4" black billet wheels
Schwalbe marathon tires
Ride design java cushion

On to the pics:








Had ADI make me two carbon seat pans to use for the ergo frame bend (Velcro'd to frame), and had carbon side guards profiled to rear wheels:


ADI back with fixed elite hardware:


Carbon back release bar:


D's locks mounted in front of camber tube:


Lever mount:


Hub rings painted gloss black to match hubs, left ring with holes silver because I like the way they look:


Single sided suspension forks and casters:


Last shot of chair with new Ride java cushion and 2" sided abs footplate:


My observations so far:

The TR chair frame is about 3 pounds lighter than my ZRA, but the D's locks added about a pound back. But I can tell a big difference transferring the frame into my car, much easier. I went up from 24" wheels to 25" and I like it better. I feel like I'm getting more out of each push. The x-laced wheels leave tons of room for my fingers when pulling them off. I ordered the wheels with blue spokes and then replaced the inside ones with black spokes to tame them down a little. I really like the D's locks so far, coming from composite scissor locks. The single lever, and locking both wheels at the same time is really convenient. I think the glide forks looks really good being single sided, less hair gets caught in them, and the supsension aspect seems very comparable to the frog legs I had before. I like the ergo frame, but don't feel a huge difference. Having two carbon seat pans has worked really well and I like having the option to pull them off quickly with the velcro. The new Ride java cushion conforms to the ergo bend in the frame really well, where as my old Ride custom cushion would probably be too stiff. I had them do the standard flat abs footplate for when I use my freewheel and need more room, and then had them add an extra 2" sided footplate that I velcro to the flat footplate to keep my feet closer together for everyday use. I went with the TR this time because I like the looks and wanted the ability to adjust my center of gravity as much as I needed. It hasn't been any more difficult to put in the car with the lower bars. It does feel more rigid than my ZRA, especially going off curbs and I like that. Hopefully this has been helpful to some extent. Questions are welcome, thanks.
New TR3...upgraded everything

Pressure sore formation

I have a dark spot / bruise near the heel of my foot, and am not sure how worried I should be. It's been there for many months, but doesn't seem to get better or worse. Should I be concerned? I elevate my foot almost every day in the afternoon after work, but haven't taken other precautions.
Attached Images
  
Pressure sore formation

brown pee

jeudi 17 mars 2016

not yellow at all. not bloody looking, though.
yesterday my pee looked like water. Im taking 3200 a day of bactrim, could that make my peepee brown?
brown pee

2003 Chrysler Town and Country Handicap Van for sale in Texas

I have a Handicap accessible van for sale. It is a high mileage van, but still runs very strong. Front seats are removable, lowered floor, ramp, etc. I have it posted on Craigslist right now. Here's the link:

http://ift.tt/1Rptgr9

I'm asking $4200. Located in Seguin, TX. If you are interested please email me at JeremieAZ@gmail.com .
2003 Chrysler Town and Country Handicap Van for sale in Texas

Thyroid???

I had my thyroid removed in 2002 pre SCI and had no trouble keeping my TSH levels regulated with a low dose synthroid. Ever since my SCI I can't get my thyroid to regulate. Constantly changing my synthroid dose and it will be fine for a few months then wham its off again. Can SCI affect thyroid levels? Or could it possibly be additional medications that I am on now? None of my doctors, endocrn or neuro has ever attributed it to the SCI.
Thyroid???

First Step Tricell Low Air Loss Mattress

To be honest im not 100% sure when it was purchased because it was my grandfathers. I do know that it is in like new condition, my grandmother said he never even used it, as he preferred another over it. So its just been sitting. We have the pump as well and blew it up last night and it still works perfectly!
Dimensions and whatnot..

The First Step Tricell mattress replacement system is a pressure redistribution, low air loss therapeutic system designed for use in extended care. Used in the prevention and treatment of pressure ulcers, it improves comfort and delivers optimum skin management.Technical information


Mattress dimensions 80L x 35W x 10D

Mattress weight 19 lbs

Maximum recommended resident/patient weight* 300 lbs

Air supply unit

Unit dimensions 12L x 11W x 7D

Unit weight 10.5 lbs

Transformer volts 120 V

Maximum electrical leakage 17 Microamps

Asking $800 obo

Attached Images
     
First Step Tricell Low Air Loss Mattress

Weary of the Stand-Up Desk Trend?

Standing up at work isn?t doing you any good

Bob Collins


If your workplace is anything like the World Headquarters of NewsCut, you have two kinds and only two kinds of colleagues: Those who stand up at their desks and those who sit down.
Not surprisingly, perhaps. I?m in the sit-down club because the wisdom of advancing age is knowing that your life, allegedly prolonged by standing, is not prolonged as a thirty-something.
The stand-up crowd tend to be a lot like soccer fans. It?s not enough that they like soccer, they insist that you have to like soccer too. Stand down, soccer fans. It?s a joke. It?s also like people who listen to public radio working into every conversation that they heard whatever they believe on public radio.
Like the notion that standing up is good for you, for example. Like those big bouncy balls that everyone was sitting on a few years ago before one or two popped under the strain.
So today?s news is big news. Standing up doesn?t do you any good, NPR reports.
?What we actually found is that most of it is, very much, just fashionable, and not proven good for your health,? says Dr. Jos Verbeek, a health researcher at the Finnish Institute of Occupational Health.
Verbeek says that the studies he and his co-authors analyzed came to conflicting conclusions about whether sit-stand desks reduce sitting time. Even the best research available wasn?t great, the researchers write in the Cochrane Database of Systematic Reviews.
The studies were either too small to be significant, the scientists say, or were poorly designed. For example, most were not randomized controlled trials, and the longest study followed participants for only six months.
In fact, there isn?t really any evidence that standing is better than sitting, Verbeek adds. The extra calories you burn from standing over sitting for a day are barely enough to cover a couple of banana chips.
Standing up isn?t bad for you, most of the experts agree; it?s just not doing anything much for you except alerting your colleagues that you?re more a follower than a leader.
Fortunately, at the World Headquarters, we also have dedicated rooms for people who need to have a good cry once in awhile. Those are going to come in handy today when this news gets out.

http://ift.tt/1Rng4cL
Weary of the Stand-Up Desk Trend?

Clean leg bags with out bleach?

mercredi 16 mars 2016

I normally clean my bags with bleach. I'm going on a cruise and they told me we are not allowed to bring bleach on the ship, it's on their prohibited substances list for some reason. They recommended using alcohol. I have also read about using vinegar. I know there are products like Urolux and m9, but I don't want to get to the ship and have them not allow them because of whatever chemicals are in them.

What would be better, alcohol or vinegar? If I use alcohol or vinegar, what is the best procedure? Any better ideas? This is only short term, so price is not an issue. The last thing I want on my vacation is a UTI.

Thanks,
Scott
Clean leg bags with out bleach?

Dirty handrims... why?



As I seem to remember, this didn't used to happen when my chair was new (it is now 5+ years old), and never happened with my first chair (that was replaced at 2 or 3 years). What exactly is causing this silvery grime to build up on my hands and how can I fix it.

The above is the result of pushing (maybe) a half mile without gloves on a dry, sunny day. the handrims are just whatever regularly comes on a pair of LXs when ordered form TiLite, so I assume they are aluminum. Have I finally worn through the clear coat on the handrims and now I'm rubbing off all of the oxidation crap onto my hands everytime I push?

Its time for a new chair, and I will be getting one, but it will probably be 8-9 months off in the future, and I need to sort this out if I am going to pretend to be some sort of gainfully employed professional... can't exactly shake hands with somebody if your hands look like that after coming in from the parking lot.

I guess my first question is: How do I fix this on this chair at a minimal cost? Could I spraypaint the handrims with a clearcoat rattlecan from Walmart?

Next, in the future, it would be dope if I didn't have to run into this problem as my next set of rims ages. If I get titanium handrims will they have a similar type of problem? What about other plasticky type of handrims, I know there are some out there, but I've never considered them before, because instinctively plastic seems like a painful burn waiting to happen on steep downhill without gloves in July.
Dirty handrims... why?

For Sale: ZIPP 404?s T/T Racing Handcycle Carbon Wheels 650c - Very Nice

For Sale: ZIPP 404?s T/T Racing Handcycle Carbon Wheels 650c - Very Nice
I'm gathering funding for a new handcycle, so I'm putting up a very nice set of Zipp 404 carbon tubular handcycle wheels for sale. The wheels were used for racing only and have very few miles on them. They are very stiff yet very light. All wheels are straight and true without any issues - no cracks or nicks in the carbon. All wheels are also very clean. Rear hubs are excellent gloss black Phil Wood high flange and have standard 1/2" threaded axle. Front hub is top of the line Shimano 9, 10, 11 ready. All the tires are brand new mounted and are included.

Front (Drive) wheel was clear coated and (the clear coat) it's chipping away at the top when you break. There's no damage to the wheel, you either clear coated again or leave it alone.
I'm asking $1299 OBO shipped via FedEx ground with tracking to anywhere inside continental U.S. (PayPal is good enough for me)

I'm also consider any and all reasonable offers on the complete Handcycle with these wheels. (The RX is not for sale)

gonartec at gmail dot com for questions or pictures

text only: six one nine seven770seven 80
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For Sale: ZIPP 404?s T/T Racing Handcycle Carbon Wheels 650c - Very Nice

Anyone own the Youbike?

Im been interested in saving up and buying the Youbike http://ift.tt/1R4r898
seems like a great way to do some cardio and get the blood flowing in the legs.

Would be nice to hear from someone that has used it.
thanks
Anyone own the Youbike?

Brand new Go Freewheel with carrier clamp

Never used - husband has Trackchair. $400 and you pay shipping.
Brand new Go Freewheel with carrier clamp

Quickie GT scissor brakes

Quickie GT wheelchair scissor brakes aluminum, these are not spring loaded ones, in very good condition. Mounts are not included! just what you see in the pictures. Asking $30 shipped, paypal only
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Quickie GT scissor brakes

Would a pressure sore look like a blackish pimple?

Checked today and found what looks like a blackish pimple on my butt. A little red around it. The skin blanches when pressed. The pimple is raised like a typical pimple would be. Could this be a pressure sore or just maybe an infected pimple? I'm staying off of it and will see what it looks like later. Any help/opinions would be appreciated. Thanks!
Would a pressure sore look like a blackish pimple?

Detachable manual wheelchair electric handcycle things vs Smart Drive

I've been looking at getting a motorised handcycle attachment for my day chair. I'm not sure on what they're actually called but something along the lines of a Batec electric, Dragonfly or Crazy Horse motorised attachment.

Does anyone use one of these? If so I was trying to work out what the difference and functionality of the different types were

The Batec uses a housing under the seat which is about 2.2 lbs. This sounds like a lot for an attachment to be on the chair the whole time. Does anyone have a problem with this? The alternative appears to be clip on arms on the handcycle itself. It doesn't look very stable and I'm worried about it coming off at speed and also looks like it will be time consuming when trying to put it on and off all the time.

It it worth going with something so large or would something like the SmartDrive MX2 be more beneficial? I'm looking at using it to travel several kilometers to the gym, train station around the city etc. Is the range and speed of the Smart Drive similar to that of one of these attachments?

Any info/advice would be greatly appreciated.
Detachable manual wheelchair electric handcycle things vs Smart Drive