Well after several doctors and shit loads of tests and scans my relentless 'burning butt' mystery has been dx'd as Levator Ani syndrome. I first posted about it here. Turns out the Levator Ani muscle is in a perpetual state of spasm. Just curious if anyone else is dealing with this hellish existance...it's fairly common among wheelchair bound patients. There no cure or remedy...just treatment with shock therapy and meditation...at least it can help the able bodied.
More about it here: (the first and last parts mostly)
http://ift.tt/1pL16Bb
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Here's some cliff notes:
-SITTING IS UNCOMFORTABLE OR UNBEARABLE
-CONSTANT OR INTERMITTENT PAIN
-TESTS REVEAL NO DISEASE
No disease can be found with conventional medical testing and the doctor typically has little to offer other than pain medications
-WORKDAYS LOST
A significant number of people with this kind of rectal pain miss work or school
-DEPRESSION AND ANXIETY
Depression, anxiety, and a severe reduction in the quality of life is common.
-NO CONVENTIONAL TREATMENTS RESOLVE THIS SYNDROME
There is no conventional medical treatment that reliably resolves this condition
-TENDENCY TOWARD ANXIETY
Patients with levator ani syndrome appear to have a general tendency to anxiety
-RESULTS FROM YEARS OF CHRONIC TENSION
As we discuss in our book and in the articles we have published, these painful muscles are the result of years of chronic tension of these muscles and at the point of pain, the patient cannot voluntarily relax these muscles
-HIGH PRESSURES INSIDE INTERNAL ANAL SPHINCTER
When pressures inside the pelvis are measured with manometry, the pressures inside the internal anal sphincter are often elevated
-SITTING, BOWEL MOVEMENTS, SEXUAL ACTIVITY, OR STRESS CAN AGGRAVATE
Pain may be aggravated by sitting, bowel movements, sexual activity and stress.
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Levator Ani Syndrome: Sitting pain
Sitting can trigger or exacerbate discomfort/pain/symptoms
Sitting is one of the great sufferings and scares in pelvic pain and makes all aspects of normal life difficult
Sitting pain makes one acutely aware of how sitting is the center of social and work life
Sitting pain usually starts out milder in the morning but after sitting through the day, there is increased discomfort that can last into the night
Patients often look for the padded seats in a restaurant because sitting is so uncomfortable
Sitting pain can make it miserable to sit with friends or family and socialize
Sometimes patients have to go on disability because they can?t work because their job is a sitting job
Sitting pain is one of the symptoms that raises the fear that you might not be able to work or function
Most patients endure sitting pain and deal with the increase of pain during the day
--------------------------------------------------------------------------------------------------------------------------
Levator Ani Syndrome: Ct Scan, MRI?s, Xray, and other tests fail to detect anything problematic in those with muscle based pelvic pain
What is disconcerting to many patients with chronic pelvic pain syndromes is that the conventional medical testing including imaging, blood and urine tests fail to document any abnormalities or point in any therapeutic direction. Conventional medical treatment including antibiotics, alpha blockers, anti-inflammatories, and all surgeries and procedures tend to fail in helping symptoms as well
Levator Ani Syndrome: Benzodiazepines temporarily reduce symptoms when first used
The family of drugs called benzodiazepines can often relieve symptoms for a few hours and are helpful when used skillfully
Benzodiazepines are addictive and when used regularly for pelvic pain they can lose their effectiveness
Benzodiazepines typically make the user tired and should not be used when driving or having to be alert
Levator Ani Syndrome: Anxiety and catastrophic thinking
The most difficult part of pelvic pain tends to be the catastrophic thought that it will never go away
Most patients who have chronic pelvic pain are preoccupied with their pain
Anxiety and catastrophic thinking distracts patient?s attention away from life and paints an unacceptable picture of the future
Levator Ani Syndrome: Sleep disturbance
Sleep disturbance is common
Patients either wake up to urinate or because of pain and anxiety
We wrote a paper about precipitous rise in cortisol in the morning amongst pelvic pain patients
Levator Ani Syndrome: Stress increases pain
Ordinary stresses as well as extraordinary stress tend to increase symptoms
When stress has triggered pelvic pain, the stress tends to triggers the tension-anxiety-pain-protective guarding cycle that continues after the stress has gone
Helplessness and hopelessness is the real suffering with chronic pelvic pain
Helplessness comes from a patient?s inability to stop the pain/discomfort that is draining and scary
Hopelessness in pelvic pain patients arise when they can?t see anything on the horizon that might help them or change their circumstances for the better
Levator Ani syndrome anyone?
More about it here: (the first and last parts mostly)
http://ift.tt/1pL16Bb
----------------------------------------------------------
Here's some cliff notes:
-SITTING IS UNCOMFORTABLE OR UNBEARABLE
-CONSTANT OR INTERMITTENT PAIN
-TESTS REVEAL NO DISEASE
No disease can be found with conventional medical testing and the doctor typically has little to offer other than pain medications
-WORKDAYS LOST
A significant number of people with this kind of rectal pain miss work or school
-DEPRESSION AND ANXIETY
Depression, anxiety, and a severe reduction in the quality of life is common.
-NO CONVENTIONAL TREATMENTS RESOLVE THIS SYNDROME
There is no conventional medical treatment that reliably resolves this condition
-TENDENCY TOWARD ANXIETY
Patients with levator ani syndrome appear to have a general tendency to anxiety
-RESULTS FROM YEARS OF CHRONIC TENSION
As we discuss in our book and in the articles we have published, these painful muscles are the result of years of chronic tension of these muscles and at the point of pain, the patient cannot voluntarily relax these muscles
-HIGH PRESSURES INSIDE INTERNAL ANAL SPHINCTER
When pressures inside the pelvis are measured with manometry, the pressures inside the internal anal sphincter are often elevated
-SITTING, BOWEL MOVEMENTS, SEXUAL ACTIVITY, OR STRESS CAN AGGRAVATE
Pain may be aggravated by sitting, bowel movements, sexual activity and stress.
----------------------------------------------------------------------------------------------------------------------------------
Levator Ani Syndrome: Sitting pain
Sitting can trigger or exacerbate discomfort/pain/symptoms
Sitting is one of the great sufferings and scares in pelvic pain and makes all aspects of normal life difficult
Sitting pain makes one acutely aware of how sitting is the center of social and work life
Sitting pain usually starts out milder in the morning but after sitting through the day, there is increased discomfort that can last into the night
Patients often look for the padded seats in a restaurant because sitting is so uncomfortable
Sitting pain can make it miserable to sit with friends or family and socialize
Sometimes patients have to go on disability because they can?t work because their job is a sitting job
Sitting pain is one of the symptoms that raises the fear that you might not be able to work or function
Most patients endure sitting pain and deal with the increase of pain during the day
--------------------------------------------------------------------------------------------------------------------------
Levator Ani Syndrome: Ct Scan, MRI?s, Xray, and other tests fail to detect anything problematic in those with muscle based pelvic pain
What is disconcerting to many patients with chronic pelvic pain syndromes is that the conventional medical testing including imaging, blood and urine tests fail to document any abnormalities or point in any therapeutic direction. Conventional medical treatment including antibiotics, alpha blockers, anti-inflammatories, and all surgeries and procedures tend to fail in helping symptoms as well
Levator Ani Syndrome: Benzodiazepines temporarily reduce symptoms when first used
The family of drugs called benzodiazepines can often relieve symptoms for a few hours and are helpful when used skillfully
Benzodiazepines are addictive and when used regularly for pelvic pain they can lose their effectiveness
Benzodiazepines typically make the user tired and should not be used when driving or having to be alert
Levator Ani Syndrome: Anxiety and catastrophic thinking
The most difficult part of pelvic pain tends to be the catastrophic thought that it will never go away
Most patients who have chronic pelvic pain are preoccupied with their pain
Anxiety and catastrophic thinking distracts patient?s attention away from life and paints an unacceptable picture of the future
Levator Ani Syndrome: Sleep disturbance
Sleep disturbance is common
Patients either wake up to urinate or because of pain and anxiety
We wrote a paper about precipitous rise in cortisol in the morning amongst pelvic pain patients
Levator Ani Syndrome: Stress increases pain
Ordinary stresses as well as extraordinary stress tend to increase symptoms
When stress has triggered pelvic pain, the stress tends to triggers the tension-anxiety-pain-protective guarding cycle that continues after the stress has gone
Helplessness and hopelessness is the real suffering with chronic pelvic pain
Helplessness comes from a patient?s inability to stop the pain/discomfort that is draining and scary
Hopelessness in pelvic pain patients arise when they can?t see anything on the horizon that might help them or change their circumstances for the better
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